Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: ECP
Relatively normal
Oh my goodness, how long has it been since I properly wrote anything here? Those of you who are distant strangers may well have feared that I was no longer around. I am! I am still very … Continue reading
Posted in * Myeloma
Tagged Aciclovir, allo, allogeneic stem cell transplant, anxiety, auto, autologous stem cell transplant, Azithromycin, Becotide, Cancer, Chondroitin, cramp, ECP, extracorporeal photopheresis, Glucosamine, Graft versus Host Disease, GvHD, Imatinib, joint pain, lucky, lungs, normal, Omeprazole, Penicillin, Prednisolone, respiratory, scleroderma
18 Comments
Blurred lines…?
So, with my new resolve to write shorter, more frequent posts, here’s the next one… My Hickman line half fell out on Friday 13 June. I don’t believe the date was to blame. I do wonder though, if perhaps nurse … Continue reading
Posted in * Myeloma, Graft versus Host Disease
Tagged amnesia, anchor, Bed Manager, Brighton, cannula, cannulation, central line, Cetirizine, chronic GvHD, Cluedo, conscious, cuff, Daycase, diarrhoea, ECP, extracorporeal photopheresis, GvHD, Haematology, Hickman line, infection, infection risk, lumens, lung GvHD, mosquito bite reaction, nurse, observation, PICC line, Piriton, radiologist, radiology, sclerodermatous GvHD, sedation, sickness, skin GvHD, SSSU, Surgical Short Stay Unit, The Ceramic House, thermometer, tubogram, unconsciou, vomit
3 Comments
jet black living... 