Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: Maggies Centre
A Letter to my MP
I have a problem… not medical this time, but financial… I began receiving Disability Living Allowance [DLA] when I was first diagnosed three years ago. The initial period for the welfare benefit was for three years, after which time I could … Continue reading
Posted in * Myeloma, Graft versus Host Disease, Miscellaneous
Tagged Anna Soubry, Benefits Advisor, Broxtowe, Department for Work and Pensions, Disability Living Allowance, Disabled Blue Badge, DLA, DWP, Employment Support Allowance, ESA, finance, Maggies Centre, Motability, MP, Personal Independence Payment, PIP, Welfare Rights
18 Comments
Devastated!
Tuesday morning rolled in with a new, faint sense of excitement as finally I was going to my first counselling appointment with Mandy at the Maggies Centre that morning, and that afternoon I would be starting a PTLLS course (Preparing … Continue reading
Posted in * Myeloma, Emotional health
Tagged anger, anxiety, bone marrow biopsy, grief, light chains, Maggies Centre, PTLLS, relapse, remission, shock, unfair
15 Comments
jet black living... 