Tag Archives: Maggies Centre

A Letter to my MP

I have a problem… not medical this time, but financial… I began receiving Disability Living Allowance [DLA] when I was first diagnosed three years ago. The initial period for the welfare benefit was for three years, after which time I could … Continue reading

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Posted in * Myeloma, Graft versus Host Disease, Miscellaneous | Tagged , , , , , , , , , , , , , , , , | 18 Comments

Welcome to the breasts, balls and bone blood gang

We met at a Mindfulness course at the Maggie’s Centre in Nottingham. I will write separately about the course, what I got from it and how I use mindfulness in my life these days – that deserves a whole post … Continue reading

Posted in * Myeloma, Fun, play & adventure | Tagged , , , , , , , , , , , , , , , , , , , , , , , , | 7 Comments

Mindful dying query

                 While I was on a roll, talking about death and dying, meditation and mindfulness, I have a query that I hope you may be able to help solve. I recall hearing a story or a piece … Continue reading

Posted in * Myeloma, Emotional health | Tagged , , , , , , , | 1 Comment

18 month post-transplant review

Today is 18 months to the day after my allogeneic transplant. It’s my 18-month-iversary! I’m alive, pretty well for the most part, looking and feeling good. So today is worthy of a celebration, although it is more of a quiet … Continue reading

Posted in * Myeloma, Emotional health, Fun, play & adventure, Other health, Sleep apnoea, Work & volunteering, Writing | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 10 Comments

Devastated!

Tuesday morning rolled in with a new, faint sense of excitement as finally I was going to my first counselling appointment with Mandy at the Maggies Centre that morning, and that afternoon I would be starting a PTLLS course (Preparing … Continue reading

Posted in * Myeloma, Emotional health | Tagged , , , , , , , , , , | 15 Comments