Tag Archives: T’ai Chi

The last post…?

Last Saturday was a huge day in my life history calendar. Six years ago I was diagnosed with multiple Myeloma. Each year that passes makes that day, 4 Feb 2011, more and more significant and makes me more aware how lucky … Continue reading

Posted in * Myeloma | Tagged , , , , , , , , , , , , , | 33 Comments

Legs eleven…

No, I haven’t started playing Bingo! But I do have a new problem to report… it’s my legs… well, it’s my arms and legs… Since around April this year, all my limb muscles have become very tight and stiff. You … Continue reading

Posted in * Myeloma, Graft versus Host Disease | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

A meditative death

I found this post today on the InterDependence Project‘s blog, written by Nancy Thompson, about how Lou Reed died. (The InterDependence Project is a secular Buddhist Centre in New York). I want to share it for anyone else facing their own death … Continue reading

Advertisement

Posted in * Myeloma | Tagged , , , , , , , , , , , , , , | 8 Comments

18 month post-transplant review

Today is 18 months to the day after my allogeneic transplant. It’s my 18-month-iversary! I’m alive, pretty well for the most part, looking and feeling good. So today is worthy of a celebration, although it is more of a quiet … Continue reading

Posted in * Myeloma, Emotional health, Fun, play & adventure, Other health, Sleep apnoea, Work & volunteering, Writing | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 10 Comments

Next line of treatment

After consulting Dr Cathy Williams last Monday, this is how they want to proceed with treatment: Velcade and Dexamethasone, plus Lansoprazole and Aciclovir. Velcade is administered intravenously, twice a week for two weeks, then one week off in a cycle of … Continue reading

Posted in * Myeloma | Tagged , , , , , , , , | 17 Comments

Long time no write…

The days go by and turn into weeks and somehow I’ve not been motivated to write. It’s been hard to gather my thoughts and know what I want to say. Even harder to stay focused on one set of thoughts … Continue reading

Posted in * Myeloma | Tagged , , , , , , , , , , , , , , , | 5 Comments

The backwardness of writing

Not sure what to call this entry, but I guess a title will occur to me once I see what I’ve written. I love the backwardness of writing… It feels like an age since I wrote anything, but just checking … Continue reading

Posted in Fun, play & adventure | Tagged , , , , , | 7 Comments

No umbrella… no dancing shoes…

I recently added the tagline to my front page: “My life with Myeloma… And learning that life isn’t about waiting for the storm to pass, it’s about dancing in the rain.” Sounds great, doesn’t it? So spiritually aware and positive?! … Continue reading

Posted in Emotional health | Tagged , , , , , | 2 Comments

Stem cell transplant

I won’t be ready for a stem cell transplant for some months yet. I think they wait until the drugs I’m currently taking have made sufficient impact on the myeloma cells. I am also not emotionally ready to really face … Continue reading

Posted in * Myeloma | Tagged , , , | 1 Comment