Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: Cancer
Relatively normal
Oh my goodness, how long has it been since I properly wrote anything here? Those of you who are distant strangers may well have feared that I was no longer around. I am! I am still very … Continue reading
Posted in * Myeloma
Tagged Aciclovir, allo, allogeneic stem cell transplant, anxiety, auto, autologous stem cell transplant, Azithromycin, Becotide, Cancer, Chondroitin, cramp, ECP, extracorporeal photopheresis, Glucosamine, Graft versus Host Disease, GvHD, Imatinib, joint pain, lucky, lungs, normal, Omeprazole, Penicillin, Prednisolone, respiratory, scleroderma
18 Comments
On being judged
Trigger Warning: This is a rant. There is some mild swearing. I am angry! I have had a rather upsetting little contretemps with a so-called friend… It happened after I posted this on Facebook: “Today will include hair colouring (if I … Continue reading
Posted in Emotional health
Tagged assertiveness, betrayal, Cancer, challenge, empathy, envy, Facebook, frenemy, friendship, funding, judgemental, justification, life-shortening, loyalty, money, NHS, Playback Theatre, politics, privilege, scholarship, support, trust
27 Comments
Apologies
Two weeks ago, I invited readers to ask me questions or to ask me to write about something in particular. I’ve had a few responses, for which I’m very grateful. Thank you to those who responded for your contributions. This … Continue reading
Posted in Miscellaneous
Tagged blogging, Cancer, Liebster Award, living, living with questions, relief, surrender, treatment, uncertainty
4 Comments
Just when you think it’s safe…
It’s over 7 months since the transplant and I’ve been very lucky… 100% chimerism, undetectable myeloma, very mild GvHD and no serious infections. Until now… For the past three days I’ve had an increasingly painful sore throat, with a phlegmy … Continue reading
jet black living... 