Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
Facebook groups
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Tag Archives: list for living
The grand finale – Part I
If you thought this post is about my own finale, you’d be right. Those of you who hoped it was a teasing headline about something else may be disappointed, but hopefully not saddened. It’s not a gloomy post, I promise, but … Continue reading →
Posted in Miscellaneous
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Tagged Antony & the Johnsons, appreciation, burial ceremony, Come Healing, Desert Island discs, dying, Edward Thomas, funeral, Gracias a la Vida, Here Comes the Sun, Is That All There Is?, Jewish, Joan Baez, Kaddish, Leonard Cohen, list for living, living with questions, Lullaby, Mary Oliver, Mercedes Sosa, Nina Simone, No One So Much As You, Ofra Haza, Peggy Lee, Playback, spirituality, Thank You for Your Love, Wild Geese
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5 Comments
List for Living review
After a few rather downbeat posts, it’s time to reinvigorate my blog, my attitude, my faithful followers and not least of all, myself! As previous readers will know, I have created a List for Living. I keep it updated, but … Continue reading →
Posted in Fun, play & adventure
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Tagged barefoot walking, Blue Man group, bucket list, Cancer, Central Park, cycling, dog fostering, fatigue, flying, horse riding, Italy, list for living, New York, opera, Playback, R&BE, writing
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4 Comments
Rusty…
My writing skills… my mental clarity… my English vocabulary… my concentration… my memory… all rather rusty, I’m afraid, after my vacation. Is it the sea water and sunshine perhaps, like an old Fiat car…? Maybe holiday inertia or just being … Continue reading →
Posted in Miscellaneous
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Tagged autologous stem cell transplant, blogging, Cancer, fatigue, Grand Tour, list for living, living with questions, relapse, remission, stem cell transplant
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6 Comments
Joyeux anniversaire à moi!
I’ve done it! I’ve survived the first year post-allogeneic (unrelated donor) stem cell transplant. That’s really quite something to celebrate, especially as I’ve not just survived, but I’m doing pretty well… you might even say thriving! Thursday 16 May was … Continue reading →
Posted in * Myeloma, Fun, play & adventure
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Tagged allogeneic stem cell transplant, immune system, list for living, mini-allo, mini-SCT, Paris, stem cell transplant
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32 Comments
Out of adversity…
“Out of adversity comes opportunity.” – Benjamin Franklin Tuesdays come around each week, regular as clockwork. These days Tuesdays see me going to Derby. Well, it makes a change from weekly visits to clinic… but that was on Thursdays. Anyway, … Continue reading →
Posted in * Myeloma
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Tagged anxiety, Big Lunch, blog, blogging, Citizens' Eye Derby, community, Community Action Derby, community reporting, confidence, depression, Derby, disabled, editing, energy, film production, film-making, Fluoxetine, food banks, list for living, narrowboat, Prozac, stamina, stem cell transplant, storyboard, supported housing, training, Tuesday, Video, visual impairment, voiceover, voluntary groups, volunteering, writing, young people, YouTube
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13 Comments
Minor scare
For the past couple of weeks, I have been feeling unbelievably tired, constantly, from when I wake up, throughout the day, until I go to bed at night. Additionally, my myeloma middle-back pain seemed to be making its presence known … Continue reading →
“Thou art a boil, a plague sore, an embossed carbuncle in my corrupted blood.”
– William Shakespeare, King Lear Okay, that’s it for the supremely apt (with the corrupted blood and all) highbrow culture… Now let’s get down to the nitty-gritty, lowbrow, down-to-earth, graphic bit… I have a boil on my back. Below are … Continue reading →
Posted in * Myeloma
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Tagged abscess, antibiotic, birthmark, blog, bone marrow biopsy, co-amoxyclav, head shaving, immune suppression, immune system, immunocompromised, infection, lance, lancing, list for living, prophylactic, Shakespeare, suppressed immune system, Video
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19 Comments
List for jetblackliving…
I’ve recently come across another blog, by Helen Fawkes, a BBC correspondent who is living with a probably terminal third episode of ovarian cancer. Like many of us with cancer, Helen is using the threat of an untimely death to … Continue reading →
Posted in * Myeloma
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Tagged bucket list, Cancer, dying, list for living, living, ovarian cancer, To Do list, travel
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7 Comments
jet black living... 