Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: antibiotic
Infection alert!
Friday morning, 4 April, saw me not-quite-leaping, more like cautiously rolling my stiff self, out of bed at an early hour to go off to volunteer at a Register & Be A Lifesaver [R&BE] stem cell register recruitment event at … Continue reading
Posted in * Myeloma, Graft versus Host Disease, Other health
Tagged Anthony Nolan, antibiotic, Certificate in Playback Theatre Practice, Chellaston Academy, Derby, endocarditis, Fletcher ward, Flucloxacillin, Haematology, Hickman line, hospital, infection, IV antibiotics, Jenny Parrish, myeloma, Nightstop, Nottingham City Hospital, osteomyelitis, Playback, Playback Theatre, pneumonia, R&BE, Register & Be a Lifesaver, School of Playback Theatre UK, Specialist Receiving Unit, SRU, staph. aureus, staphylococcus aureus, stem cell donor, stem cell register, temperature, Vancomycin, volunteer, volunteering
6 Comments
Vlog #2: Admitted to hospital
I’ve just spent eight days in hospital due to a serious infection via my Hickman line. I’m in the midst of writing about it, but having difficulty concentrating, so it may take some time. In the meantime, here’s a little … Continue reading
Drama down south
Oh yes, there’s more… but this time, it’s nothing to do with a boil, abscess or wound, you’ll be glad to hear. This one is a cautionary, yet amusing tale… As you’ll know if you’ve followed my blog recently, I … Continue reading
Posted in * Myeloma
Tagged abscess, anti-viral, antibiotic, antidepressant, chemotherapy, holiday, MediMemo, pill box, steroid, steroids, tablets, Vet, wound
8 Comments
Boiling down south
Sadly, the title of this post bears no relation to weather conditions up north, down south or otherwise… I’d have to go a lot further south. On Tuesday, I was driving down the M1 while the non-drama of my light … Continue reading
Posted in * Myeloma
Tagged abscess, antibiotic, bitter taste, Clarithromycin, Easter, Inadine, infection, lance, lancing, latex gloves, light chains, local anaesthetic, minor operation, saline solution, Viva Lewes, wound, wound packing
4 Comments
Keeping my eye on the ball
One of the vulnerabilities for patients after a donor transplant is Pneumocystis pneumonia (PCP). According to Wiki: “Pneumocystis is commonly found in the lungs of healthy people, but, being a source of opportunistic infection, it can cause a lung infection in people with a weak … Continue reading
Posted in * Myeloma
Tagged allergic reaction, allogeneic stem cell transplant, anaphylaxis, antibiotic, co-trimoxazole, immune suppression, immune system, immunocompromised, Leukaemia, mini-allo, mortality, nebuliser, PCP, Pentamidine, pneumonia, prophylactic, Septrin, stem cell transplant, sulphonamides, suppressed immune system
14 Comments
Discharged
After two nights in the Specialist Receiving Unit, and not being transferred to any other ward, neither oncology nor haematology, I was discharged. My whole stay in hospital was happily short-lived and uneventful. When I arrived on Sunday, I expected … Continue reading
Just when you think it’s safe…
It’s over 7 months since the transplant and I’ve been very lucky… 100% chimerism, undetectable myeloma, very mild GvHD and no serious infections. Until now… For the past three days I’ve had an increasingly painful sore throat, with a phlegmy … Continue reading
Injections and excursions
Tuesday was the day to get things started… I had to start taking a week’s course of anti-everythings… biotic, fungal and viral. This is all prophylactic, i.e. to protect against any infections, rather than to treat them. Chemotherapy makes the … Continue reading
jet black living... 