Tag Archives: Myeloma UK

The last post…?

Posted on Sat, 11 Feb 2017 by Jet Black

Last Saturday was a huge day in my life history calendar. Six years ago I was diagnosed with multiple Myeloma. Each year that passes makes that day, 4 Feb 2011, more and more significant and makes me more aware how lucky … Continue reading →

Posted in * Myeloma | Tagged , , , , , , , , , , , , , | 33 Comments

The sadness of so many losses

Posted on Fri, 21 Mar 2014 by Jet Black

I began writing this a couple of months ago but didn’t finish the draft I’d started. Today though I’ve been reminded again of the sadness of loss; it comes and goes with a regular dull rhythm. On this Spring Equinox, … Continue reading →

Posted in * Myeloma, Death & dying, Graft versus Host Disease | Tagged , , , , , , , , , , , , , , , , , | 21 Comments

Myeloma UK Clinical Trials

Posted on Sat, 1 Feb 2014 by Jet Black

From time to time, I receive email updates from Myeloma UK, covering a variety of topics. To be honest, usually I take a brief glance and delete them without further ado. I tend to leave the medical stuff to the … Continue reading →

Posted in * Myeloma | Tagged , , , , , , | 12 Comments

Kelsey and the Yellow Kite

Posted on Mon, 7 Oct 2013 by Jet Black

I remember when I was first diagnosed, one thing I felt grateful for was not having young children… to worry about, to have to arrange care for while I was incapable of even caring for myself, to be upset about … Continue reading →

Posted in * Myeloma | Tagged , , | 2 Comments

Flying high

Posted on Fri, 2 Aug 2013 by Jet Black

So there we are, Colin & Deborah, Lorna & Mike and I sitting in the garden on Sunday afternoon after the party, talking about the party, the great music, the friendly people, the fabulous weather and the amazing raffle prizes, … Continue reading →

Posted in * Myeloma | Tagged , , , , , , | 5 Comments

A pity party? No, a damn good myeloma party!

Posted on Wed, 31 Jul 2013 by Jet Black

A pity party is one “in which you spend your time feeling sorry for yourself and whining endlessly about how crappy your life is.” (as defined by Urban Dictionary). It would be very easy and understandable for any of us … Continue reading →

Posted in * Myeloma, Emotional health, Fun, play & adventure | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 8 Comments

Stem cell transplant

Posted on Fri, 4 Mar 2011 by Jet Black

I won’t be ready for a stem cell transplant for some months yet. I think they wait until the drugs I’m currently taking have made sufficient impact on the myeloma cells. I am also not emotionally ready to really face … Continue reading →

Posted in * Myeloma | Tagged , , , | 1 Comment