Dancing in the rain
-
-
Recent Posts
Archives
Links
* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
Facebook groups
Tags
- Aciclovir
- allogeneic stem cell transplant
- anniversary
- Anthony Nolan
- antibiotic
- anxiety
- autologous stem cell transplant
- blog
- blogging
- blood count
- blood test
- bone disease
- bone marrow biopsy
- Cancer
- cannula
- cannulation
- chemotherapy
- chimerism
- clinical trial
- confidence
- CPAP
- cycling
- death
- depression
- Dexamethasone
- donor stem cell transpant
- drugs
- dying
- fatigue
- fear
- Fluoxetine
- Graft versus Host Disease
- GvHD
- Haematology
- Hickman line
- immune suppression
- immune system
- immunocompromised
- infection
- insomnia
- Jewish
- kidneys
- Leukaemia
- light chains
- list for living
- living
- Maggies Centre
- Melphalan
- mindfulness
- mini-allo
- myeloma
- Myeloma UK
- Penicillin
- positive attitude
- Prednisolone
- relapse
- remission
- Revlimid
- SCT
- shock
- side effects
- Sleep
- Snoring
- stem cell transplant
- steroids
- suppressed immune system
- T'ai Chi
- total body irradiation
- transplant
- Velcade
- Video
- volunteering
- writing
- x-ray
- Zometa
Tag Archives: relapse
The ‘C’ word
I’ve put off writing this post for a few weeks because I’ve been getting my own head around the ramifications, before sharing it with the world and having to deal with people’s reactions, as much as anything else. At my … Continue reading
What happens next?
Although I’ve hinted, I’ve not yet written about what happens after this round of treatment on Velcade. Those of you with Myeloma or other blood cancers will know or guess what’s on the cards, but for the rest of you, … Continue reading
Posted in * Myeloma
Tagged allogeneic stem cell transplant, autologous stem cell transplant, Bortezomib, chimerism, donor stem cell transpant, immune system, Melphalan, mini-allo, mini-SCT, mustard gas, proteasome inhibitor, radiotherapy, reduced intensity chemotherapy, relapse, remission, Revlimid, RIC, SCT, stem cell rescue, tandem, total body irradiation, transplant, Vellcade
10 Comments
Pricks and possibilities…
I went to see the nurse at my GP surgery on Monday for the first of a round of new vaccinations I need now that it’s six months following the stem cell transplant, which would have wiped out all the … Continue reading
Posted in * Myeloma
Tagged Dexamethasone, donor stem cell transpant, optician, relapse, remission, Velcade
8 Comments
Happy Anniversary!
Following a stem cell transplant, they count the days starting with Day 0, D +1, etc. I’ve no idea what day post-transplant it is now, but I do know that today is Year +1. Yes, it’s the anniversary of my diagnosis on … Continue reading
Posted in * Myeloma
Tagged celebration, complete remission, depression, relapse, stem cell transplant
5 Comments
Devastated!
Tuesday morning rolled in with a new, faint sense of excitement as finally I was going to my first counselling appointment with Mandy at the Maggies Centre that morning, and that afternoon I would be starting a PTLLS course (Preparing … Continue reading
Posted in * Myeloma, Emotional health
Tagged anger, anxiety, bone marrow biopsy, grief, light chains, Maggies Centre, PTLLS, relapse, remission, shock, unfair
15 Comments