Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: death
Four years on
As you’ll be aware if you’re a regular reader, there hasn’t been much ‘regular’ reading going on here for some time. But, today is the four year anniversary of my myeloma diagnosis, so it warrants acknowledgement at the very least. … Continue reading →
Posted in * Myeloma
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Tagged anniversary, blog, blogging, Cancer, death, death rates, Deborah Bone, diagnosis, Dial M for Myeloma, Disco 2000, dying, ECP, extra-corporeal photopheresis, eyes, family, flight, flying, Graft versus Host Disease, gut, GvHD, incurable, life expectancy, lungs, mortality, mouth, myeloma, Myeloma Survival, Prednisolone, Pulp, scleroderma, steroids, travel insurance, USA, vagina, Welcome to the Parallel Universe
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17 Comments
The sadness of so many losses
I began writing this a couple of months ago but didn’t finish the draft I’d started. Today though I’ve been reminded again of the sadness of loss; it comes and goes with a regular dull rhythm. On this Spring Equinox, … Continue reading →
Posted in * Myeloma, Death & dying, Graft versus Host Disease
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Tagged anniversary, burial, cat, Critical Care, death, diagnosis, dog, dying, If that's all there is, Intensive Care, Leiber & Stoller, living, Myeloma UK, Peggy Lee, sadness, skin, skin GvHD, stem cell transplant
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21 Comments
Why I won’t be getting run over by a bus any time soon!
Originally posted on Wendy's World:
How many times have I heard that I could get run over by a bus any time or other such platitudes about how none of us know when our number is up when I…
Posted in Death & dying
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Tagged blogging, Cancer, death, dying, incurable, run over by a bus, statistics
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4 Comments
Welcome to the breasts, balls and bone blood gang
We met at a Mindfulness course at the Maggie’s Centre in Nottingham. I will write separately about the course, what I got from it and how I use mindfulness in my life these days – that deserves a whole post … Continue reading →
Posted in * Myeloma, Fun, play & adventure
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Tagged advanced cancer, balls, blood, bone, breast cancer, Cadbury's fruit and nut, cloves, creativity, death, dying, friendship, knitting, living, Maggies Centre, mindfulness, Occupational Therapy, orange, pomander, prostate cancer, secondary cancer, singing, slipped disc, support, terminal cancer, Terry's chocolate orange
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7 Comments
Mindful dying query
While I was on a roll, talking about death and dying, meditation and mindfulness, I have a query that I hope you may be able to help solve. I recall hearing a story or a piece … Continue reading →
Posted in * Myeloma, Emotional health
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Tagged death, dying, Let's Talk - Wellbeing, Maggies Centre, meditation, mindfulness, Nottingham, pain relief
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1 Comment
A meditative death
I found this post today on the InterDependence Project‘s blog, written by Nancy Thompson, about how Lou Reed died. (The InterDependence Project is a secular Buddhist Centre in New York). I want to share it for anyone else facing their own death … Continue reading →
Posted in * Myeloma
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Tagged Buddhism, Cancer, death, dying, InterDependence Project, Laurie Anderson, living, Lou Reed, love, meditation, mindfulness, Rolling Stone, sadness, T'ai Chi, terminal illness
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8 Comments
Just when you think it’s safe…
It’s over 7 months since the transplant and I’ve been very lucky… 100% chimerism, undetectable myeloma, very mild GvHD and no serious infections. Until now… For the past three days I’ve had an increasingly painful sore throat, with a phlegmy … Continue reading →
Posted in * Myeloma
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Tagged antibiotic, Cancer, cannula, cannulation, chimerism, death, dehydration, Graft versus Host Disease, GvHD, Haematology, hospital, hydration, immunocompromised, infection, insomnia, Paracetamol, sore throat, stem cell transplant, temperature, transplant, virus
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10 Comments
The other side of the coin
In my post entitled ‘On living and dying‘ in March this year, I wrote about what living meant for me at that time. The other side of the Living coin is of course, Dying. They’re completely connected and integrated for … Continue reading →
Four months along – update
On Sunday 4 December, it was exactly 4 months after the transplant of my stem cells and I’ve not written anything for a month, so it’s time for an update. You may recall I am on the Myeloma XI trial and … Continue reading →
Posted in * Myeloma
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Tagged bone marrow biopsy, clinical trial, death, dying, kappa:lambda ratio, life expectancy, maintenance, Myeloma XI trial, post-transplant, relapse, remission, Revlimid, Zometa
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10 Comments
jet black living... 