Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: fear
Strange times
After a few celebratory posts about living, I need to return to the sleep apnoea saga… I know some of you are avidly awaiting the next instalment. However, first, I want to share something strange… Having returned my jet pack-styled … Continue reading
Posted in * Myeloma, Emotional health, Sleep apnoea
Tagged anger, Continuous Positive Airways Pressure, CPAP, fear, patient care, shock, Sleep apnoea, Snoring
13 Comments
A pity party? No, a damn good myeloma party!
A pity party is one “in which you spend your time feeling sorry for yourself and whining endlessly about how crappy your life is.” (as defined by Urban Dictionary). It would be very easy and understandable for any of us … Continue reading
Posted in * Myeloma, Emotional health, Fun, play & adventure
Tagged anger, autologous stem cell transplant, birthday, blog, blogging, Bortezomib, CC Smugglers, celebration, clinical trial, devastation, Disco 2000, fear, fundraising, hospice, Jarvis Cocker, myeloma forum, Myeloma UK, pain, peripheral neuropathy, picnic, pity party, positive attitude, remission, smouldering myeloma, stem cell, stem cell harvest, stem cell transplant, stem cells, support, transplant, treatment, Velcade
8 Comments
Sea-salted star-stuff… gifts and miracles
“The cosmos is within us. We are made of star-stuff. We are a way for the universe to know itself.” ― Carl Sagan I’d like to share something written by my friend Rebecca (with an acknowledged nod to Carl Sagan), who is still in … Continue reading
Posted in Miscellaneous
Tagged allogeneic stem cell transplant, Anthony Nolan, Australian Bone Marrow Donor Registry, Be the Match, Bone Marrow Registry, Carl Sagan, Delete Blood Cancer, ethnic background, Ezer Mizion Bone Marrow Donor Registry, fear, Héma-Québec, Jewish, living, lympoma, miracle, MUD stem cell transplant, One Match, Sephardi, stem cell donation, stem cell donor, stem cell transplant, stem cells
3 Comments
jet black living... 