Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
-
-
Recent Posts
Archives
Links
* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
Facebook groups
Tags
- Aciclovir
- allogeneic stem cell transplant
- anniversary
- Anthony Nolan
- antibiotic
- anxiety
- autologous stem cell transplant
- blog
- blogging
- blood count
- blood test
- bone disease
- bone marrow biopsy
- Cancer
- cannula
- cannulation
- chemotherapy
- chimerism
- clinical trial
- confidence
- CPAP
- cycling
- death
- depression
- Dexamethasone
- donor stem cell transpant
- drugs
- dying
- fatigue
- fear
- Fluoxetine
- Graft versus Host Disease
- GvHD
- Haematology
- Hickman line
- immune suppression
- immune system
- immunocompromised
- infection
- insomnia
- Jewish
- kidneys
- Leukaemia
- light chains
- list for living
- living
- Maggies Centre
- Melphalan
- mindfulness
- mini-allo
- myeloma
- Myeloma UK
- Penicillin
- positive attitude
- Prednisolone
- relapse
- remission
- Revlimid
- SCT
- shock
- side effects
- Sleep
- Snoring
- stem cell transplant
- steroids
- suppressed immune system
- T'ai Chi
- total body irradiation
- transplant
- Velcade
- Video
- volunteering
- writing
- x-ray
- Zometa
Tag Archives: lung GvHD
Blurred lines…?
So, with my new resolve to write shorter, more frequent posts, here’s the next one… My Hickman line half fell out on Friday 13 June. I don’t believe the date was to blame. I do wonder though, if perhaps nurse … Continue reading
Posted in * Myeloma, Graft versus Host Disease
Tagged amnesia, anchor, Bed Manager, Brighton, cannula, cannulation, central line, Cetirizine, chronic GvHD, Cluedo, conscious, cuff, Daycase, diarrhoea, ECP, extracorporeal photopheresis, GvHD, Haematology, Hickman line, infection, infection risk, lumens, lung GvHD, mosquito bite reaction, nurse, observation, PICC line, Piriton, radiologist, radiology, sclerodermatous GvHD, sedation, sickness, skin GvHD, SSSU, Surgical Short Stay Unit, The Ceramic House, thermometer, tubogram, unconsciou, vomit
3 Comments
Not normal
Friends, family, acquaintances, fellow cancer patients, the public at large see me running around, having fun, being busy, volunteering, travelling, visiting friends, driving a big fancy new car that I could not afford without a Motability lease, going out to … Continue reading
Posted in * Myeloma
Tagged abnormal, acceptance, Aciclovir, Alendronic acid, Azithromycin, dry eye, expert patient, eye drops, Eyebag, Fluoxetine, Graft versus Host Disease, GvHD, Lansoprazole, life, living, Lucralube, lung GvHD, Menopace Plus, Motability, normal, Nystatin, Omega 7, Penicillin, Posaconazole, Prednisolone, sclerodermatous GvHD, shiock, steroids, Systane Ultra, Vagifem
20 Comments
jet black living... 