Tag Archives: steroids

Four years on

As you’ll be aware if you’re a regular reader, there hasn’t been much ‘regular’ reading going on here for some time. But, today is the four year anniversary of my myeloma diagnosis, so it warrants acknowledgement at the very least. … Continue reading

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Posted in * Myeloma | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 17 Comments

Injured in the line of duty…

You might think that no posts from this quarter means no interesting news. You’d be wrong… Mostly I’ve been so busy and so high and unable to concentrate due to the effects of steroids, that I’ve either not found/made the … Continue reading

Posted in Other health, Work & volunteering | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 8 Comments

Not normal

Friends, family, acquaintances, fellow cancer patients, the public at large see me running around, having fun, being busy, volunteering, travelling, visiting friends, driving a big fancy new car that I could not afford without a Motability lease, going out to … Continue reading

Posted in * Myeloma | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 20 Comments

Ten things I learnt in Spain…

          For some light relief, let me share some of the challenges, joys and startling insights that I encountered while in Barcelona and Girona, in Spain for five days last week… 1. If I want to climb Girona‘s medieval … Continue reading

Posted in * Myeloma, Fun, play & adventure, Graft versus Host Disease | Tagged , , , , , , , , , , , , , , , , , , | 12 Comments

Legs eleven…

No, I haven’t started playing Bingo! But I do have a new problem to report… it’s my legs… well, it’s my arms and legs… Since around April this year, all my limb muscles have become very tight and stiff. You … Continue reading

Posted in * Myeloma, Graft versus Host Disease | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Drama down south

Oh yes, there’s more… but this time, it’s nothing to do with a boil, abscess or wound, you’ll be glad to hear. This one is a cautionary, yet amusing tale… As you’ll know if you’ve followed my blog recently, I … Continue reading

Posted in * Myeloma | Tagged , , , , , , , , , , , , | 8 Comments

Travellin’ shoes

Norway was amazing. My worries and anxieties came to nought in the end. I was never cold and only fell over once, in lovely soft snow. All the gear I bought did exactly what was required. Ice grippers are a … Continue reading

Posted in * Myeloma | Tagged , , , , , , , , , , , , , | 13 Comments

Mixed feelings and good results!

From previous posts, you’ll know that my blood and urine results have all been very positive. They take about two weeks to be sent away for analysis. So the other day I called Sarah, one of the specialist nurses at the … Continue reading

Posted in * Myeloma | Tagged , , , , | 2 Comments

Confidence and identity…

I’ve become aware that my sense of myself has noticeably changed in the past few months. Initially I was just ill, feeble and felt like I was close to death, so almost no sense of myself, except as an expiring worried … Continue reading

Posted in Emotional health | Tagged , , , , , , , , | 2 Comments

No umbrella… no dancing shoes…

I recently added the tagline to my front page: “My life with Myeloma… And learning that life isn’t about waiting for the storm to pass, it’s about dancing in the rain.” Sounds great, doesn’t it? So spiritually aware and positive?! … Continue reading

Posted in Emotional health | Tagged , , , , , | 2 Comments