Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
-
-
Recent Posts
Archives
Links
* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
Facebook groups
Tags
- Aciclovir
- allogeneic stem cell transplant
- anniversary
- Anthony Nolan
- antibiotic
- anxiety
- autologous stem cell transplant
- blog
- blogging
- blood count
- blood test
- bone disease
- bone marrow biopsy
- Cancer
- cannula
- cannulation
- chemotherapy
- chimerism
- clinical trial
- confidence
- CPAP
- cycling
- death
- depression
- Dexamethasone
- donor stem cell transpant
- drugs
- dying
- fatigue
- fear
- Fluoxetine
- Graft versus Host Disease
- GvHD
- Haematology
- Hickman line
- immune suppression
- immune system
- immunocompromised
- infection
- insomnia
- Jewish
- kidneys
- Leukaemia
- light chains
- list for living
- living
- Maggies Centre
- Melphalan
- mindfulness
- mini-allo
- myeloma
- Myeloma UK
- Penicillin
- positive attitude
- Prednisolone
- relapse
- remission
- Revlimid
- SCT
- shock
- side effects
- Sleep
- Snoring
- stem cell transplant
- steroids
- suppressed immune system
- T'ai Chi
- total body irradiation
- transplant
- Velcade
- Video
- volunteering
- writing
- x-ray
- Zometa
Tag Archives: steroids
Injured in the line of duty…
You might think that no posts from this quarter means no interesting news. You’d be wrong… Mostly I’ve been so busy and so high and unable to concentrate due to the effects of steroids, that I’ve either not found/made the … Continue reading
Posted in Other health, Work & volunteering
Tagged A&E, Anthony Nolan, arm, Attenborough, Beeston Bakehouse, Bilborough College, blogging, bone marrow register, Bone Marrow Registry, British Bone Marrow Registry, buddy bandage, buddy taping, cake sale, Charlotte Connolly, concentration, cord blood, Delete Blood Cancer, dislocated, dog sledding, Dr Carolyn Lott, Dr Rashbal Ghattaora, driving, elevate, Emergency, Facebook, finger, Finland, First Aid, fracture, fundraising, hand, ice bag, Marrow, medical history, medication, MediLink, myeloma, NHS Blood Service, Nottingham, Nottingham Trent University, Paracetamol, proximal phalange, R&BE, recruitment, Register & Be a Lifesaver, Russell Pollard, stem cell register, steroids, student medical centre, students, Sunrise Medical Centre, swelling, swollen, variety, volunteering, x-ray
8 Comments
Not normal
Friends, family, acquaintances, fellow cancer patients, the public at large see me running around, having fun, being busy, volunteering, travelling, visiting friends, driving a big fancy new car that I could not afford without a Motability lease, going out to … Continue reading
Posted in * Myeloma
Tagged abnormal, acceptance, Aciclovir, Alendronic acid, Azithromycin, dry eye, expert patient, eye drops, Eyebag, Fluoxetine, Graft versus Host Disease, GvHD, Lansoprazole, life, living, Lucralube, lung GvHD, Menopace Plus, Motability, normal, Nystatin, Omega 7, Penicillin, Posaconazole, Prednisolone, sclerodermatous GvHD, shiock, steroids, Systane Ultra, Vagifem
20 Comments
Legs eleven…
No, I haven’t started playing Bingo! But I do have a new problem to report… it’s my legs… well, it’s my arms and legs… Since around April this year, all my limb muscles have become very tight and stiff. You … Continue reading
Posted in * Myeloma, Graft versus Host Disease
Tagged allogeneic stem cell transplant, Bingo, chronic GvHD, Ciclosporin, CK, CPK, Creatine kinase, Creatine Phosphokinase, Elizabeth Romhild, Graft versus Host Disease, GvHD, joints, Min Jeong Seo, mini-allo, muscle flexibility, muscle tightness, muscle weakness, muscles, myopathy, myositis, skin, statins, stem cell transplant, steroids, T'ai Chi, tendons, tight muscles
Leave a comment
Drama down south
Oh yes, there’s more… but this time, it’s nothing to do with a boil, abscess or wound, you’ll be glad to hear. This one is a cautionary, yet amusing tale… As you’ll know if you’ve followed my blog recently, I … Continue reading
Posted in * Myeloma
Tagged abscess, anti-viral, antibiotic, antidepressant, chemotherapy, holiday, MediMemo, pill box, steroid, steroids, tablets, Vet, wound
8 Comments
Travellin’ shoes
Norway was amazing. My worries and anxieties came to nought in the end. I was never cold and only fell over once, in lovely soft snow. All the gear I bought did exactly what was required. Ice grippers are a … Continue reading
Posted in * Myeloma
Tagged anxiety, confidence, Dexamethasone, fatigue, Graft versus Host Disease, GvHD, holiday, kidney impairment, pre-existing condition, remission, steroids, travel, travel insurance, vacation
13 Comments
Mixed feelings and good results!
From previous posts, you’ll know that my blood and urine results have all been very positive. They take about two weeks to be sent away for analysis. So the other day I called Sarah, one of the specialist nurses at the … Continue reading
Posted in * Myeloma
Tagged cycling, Dexamethasone, Hickman line, stem cell transplant, steroids
2 Comments
Confidence and identity…
I’ve become aware that my sense of myself has noticeably changed in the past few months. Initially I was just ill, feeble and felt like I was close to death, so almost no sense of myself, except as an expiring worried … Continue reading
Posted in Emotional health
Tagged Cancer Vixen, confidence, Crazy Sexy Cancer Tips, Dexamethasone, identity, Myeloma Woman, Revlimid, side effects, steroids
2 Comments
No umbrella… no dancing shoes…
I recently added the tagline to my front page: “My life with Myeloma… And learning that life isn’t about waiting for the storm to pass, it’s about dancing in the rain.” Sounds great, doesn’t it? So spiritually aware and positive?! … Continue reading
Posted in Emotional health
Tagged Dexamethasone, fatigue, Revlimid, side effects, steroids, T'ai Chi
2 Comments
jet black living... 