Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: immunocompromised
Keeping my eye on the ball
One of the vulnerabilities for patients after a donor transplant is Pneumocystis pneumonia (PCP). According to Wiki: “Pneumocystis is commonly found in the lungs of healthy people, but, being a source of opportunistic infection, it can cause a lung infection in people with a weak … Continue reading
Posted in * Myeloma
Tagged allergic reaction, allogeneic stem cell transplant, anaphylaxis, antibiotic, co-trimoxazole, immune suppression, immune system, immunocompromised, Leukaemia, mini-allo, mortality, nebuliser, PCP, Pentamidine, pneumonia, prophylactic, Septrin, stem cell transplant, sulphonamides, suppressed immune system
14 Comments
Discharged
After two nights in the Specialist Receiving Unit, and not being transferred to any other ward, neither oncology nor haematology, I was discharged. My whole stay in hospital was happily short-lived and uneventful. When I arrived on Sunday, I expected … Continue reading
Just when you think it’s safe…
It’s over 7 months since the transplant and I’ve been very lucky… 100% chimerism, undetectable myeloma, very mild GvHD and no serious infections. Until now… For the past three days I’ve had an increasingly painful sore throat, with a phlegmy … Continue reading
Breaking a taboo
It’s taken me quite some time to dare to write this post; it feels like such an unmentionable topic. But, I’m coming out… I have genital warts. There, I’ve said it! Phew! But, don’t fear, I will NOT be posting … Continue reading
Posted in * Myeloma
Tagged Aciclovir, Aldara, aqueous cream, CMV, cryotherapy, cytomegalovirus, GUM, HPV, HSV, human papilomavirus, immune suppression, immune system, immunocompromised, infection, liquid nitrogen, Pentamidine, sexual health, suppressed immune system, taboo, virus, Warticon
7 Comments
“A walk in the park…”
These were the words uttered by my consultant a couple of weeks ago, in relation to my forthcoming allogeneic (donor) stem cell transplant… “It will be like a walk in the park compared to the autologous (my own cells) transplant.” … Continue reading
Posted in * Myeloma
Tagged allogeneic stem cell transplant, blood group, chemotherapy, chimerism, CMV, cytomegalovirus, DNA, donor stem cell transpant, Graft versus Host Disease, GvHD, immune suppression, immune system, immunocompromised, infection, irradiation, mini-allo, mini-SCT, MUD stem cell transplant, reduced intensity chemotherapy, rejection, suppressed immune system, total body irradiation
10 Comments
jet black living... 