Tag Archives: transplant

A pity party? No, a damn good myeloma party!

A pity party is one “in which you spend your time feeling sorry for yourself and whining endlessly about how crappy your life is.” (as defined by Urban Dictionary). It would be very easy and understandable for any of us … Continue reading

Posted in * Myeloma, Emotional health, Fun, play & adventure | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 8 Comments

Identity shift

On 16 April, I was eleven months post-transplant. That’s almost a year! And what a celebration I’m going to have for my one-year anniversary, on 16 May! But for now, I’m quite content with quietly appreciating how well things are … Continue reading

Posted in * Myeloma, Emotional health | Tagged , , , , , , , , , , , , , , , , , , | 13 Comments

The ‘C’ word

I’ve put off writing this post for a few weeks because I’ve been getting my own head around the ramifications, before sharing it with the world and having to deal with people’s reactions, as much as anything else. At my … Continue reading

Posted in * Myeloma | Tagged , , , , , , , , , , , , , | 24 Comments

Resting

I’ve been busy. I’ve been very busy. Although it may not seem like it, even to me, I’m doing a lot for someone at this point in recovery. And that’s the crucial point! It’s easy to think, over eight months … Continue reading

Posted in * Myeloma | Tagged , , , , , , , | 23 Comments

January 2013

January 2013 marks eight months post-transplant, so time for an update… I’m well and truly over the virus I had over New Year… and the accompanying anxiety. My blood counts remain good. I don’t even look at the results now. The … Continue reading

Posted in * Myeloma | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 18 Comments

Just when you think it’s safe…

It’s over 7 months since the transplant and I’ve been very lucky… 100% chimerism, undetectable myeloma, very mild GvHD and no serious infections. Until now… For the past three days I’ve had an increasingly painful sore throat, with a phlegmy … Continue reading

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Rituximab

No, this is not a high-scoring Scrabble word. If it were, it’d be worth 20 points… 40 on a Double Word. If I managed to get the X to land on a Triple Letter, it’d go up to 72, plus … Continue reading

Posted in * Myeloma | Tagged , , , , , , , , , , , , , | 4 Comments