Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
Facebook groups
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Tag Archives: drugs
Drug dealing
Before I overwhelm you and me both with all that’s been happening medically in the last few weeks/months (if I ever get around to actually writing it up)… I’d like to share a bit of naughtiness I got up to … Continue reading
Posted in * Myeloma
Tagged allogeneic stem cell transplant, autistic, Cheers!, corset designer, drugs, graft, GvHD, Haematology, hospital corridors, Leukaemia, lymphoma, medication, naughty, needles, Nottingham City Hospital, pharmacy, sharps, STC, stem cell transplant, tablets, transplant clinic
9 Comments
Striving for Balance
Endeavouring to find balance seems to be my current new way of life… and doing a lot of wobbling in the process. On a medical level, the doctors have been striving for balance of the Ciclosporin (immune-suppressant) dosage. They needed to … Continue reading
Up to the minute news… stem cell harvest is GO!
I had a hospital appointment this morning and it’s all systems go with the stem cell harvest. The first date they’ve given me is Thursday 9 June, when they’ll give me an initial chemotherapy treatment as an overnight patient. This … Continue reading
Posted in * Myeloma
Tagged Cancer, chemotherapy, Cyclophosphamide, drugs, Haematology, Hickman line, immune system, Melphalan, stem cell transplant
7 Comments
Stem cell transplant
I won’t be ready for a stem cell transplant for some months yet. I think they wait until the drugs I’m currently taking have made sufficient impact on the myeloma cells. I am also not emotionally ready to really face … Continue reading
Cocktail anyone…?
So… I was invited to take part in a clinical trial for the treatment of myeloma. The trial is a randomised comparison between the currently used combination of drugs and a newer, hopefully more effective set. The main benefit of … Continue reading
Posted in * Myeloma
Tagged chemotherapy, Cyclophosphamide, Dexamethasone, drugs, fatigue, lenalidomide, Revlimid, side effects, steroids
3 Comments
Drugs… just say NO!
Unlike other cancers, where there is a solid tumour, I have been told, there is the chance to take a breath, assess and make decisions about which sort of treatment and when… With Myeloma, they have to act fast, as … Continue reading
