Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: Velcade
A pity party? No, a damn good myeloma party!
A pity party is one “in which you spend your time feeling sorry for yourself and whining endlessly about how crappy your life is.” (as defined by Urban Dictionary). It would be very easy and understandable for any of us … Continue reading
Posted in * Myeloma, Emotional health, Fun, play & adventure
Tagged anger, autologous stem cell transplant, birthday, blog, blogging, Bortezomib, CC Smugglers, celebration, clinical trial, devastation, Disco 2000, fear, fundraising, hospice, Jarvis Cocker, myeloma forum, Myeloma UK, pain, peripheral neuropathy, picnic, pity party, positive attitude, remission, smouldering myeloma, stem cell, stem cell harvest, stem cell transplant, stem cells, support, transplant, treatment, Velcade
8 Comments
Blame it on the Dex… and other effects
The joys of Dex! I’m now off all medication – not even taking any vitamins or supplements – I just wanted a break before the next round of treatment and medication starts. I started writing this quite a few weeks ago … Continue reading
It’s working!
This is just a quick post lest I forget to mention it… I kinda took it on the chin, but perhaps we should be shouting about it… I’ve been having blood tests since I first heard about the relapse, with … Continue reading
Pricks and possibilities…
I went to see the nurse at my GP surgery on Monday for the first of a round of new vaccinations I need now that it’s six months following the stem cell transplant, which would have wiped out all the … Continue reading
Posted in * Myeloma
Tagged Dexamethasone, donor stem cell transpant, optician, relapse, remission, Velcade
8 Comments
Next line of treatment
After consulting Dr Cathy Williams last Monday, this is how they want to proceed with treatment: Velcade and Dexamethasone, plus Lansoprazole and Aciclovir. Velcade is administered intravenously, twice a week for two weeks, then one week off in a cycle of … Continue reading
Posted in * Myeloma
Tagged Aciclovir, anti-viral, Dexamethasone, Lansoprazole, peripheral neuropathy, proteasome inhibitor, shingles, T'ai Chi, Velcade
17 Comments
jet black living... 