Tag Archives: mini-allo

Recording my anniversary

I’ve not written a blog post for ages. Lots of stuff, both medical and fun, has happened and is happening. Nothing serious or life-threatening on the medical side, although the visit from the Critical Care Unit nurse while I was … Continue reading

Posted in * Myeloma, Fun, play & adventure | Tagged , , , , , , , , , , , , , , , , , , , , | 8 Comments

Legs eleven…

No, I haven’t started playing Bingo! But I do have a new problem to report… it’s my legs… well, it’s my arms and legs… Since around April this year, all my limb muscles have become very tight and stiff. You … Continue reading

Posted in * Myeloma, Graft versus Host Disease | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

A comic moment in clinic

Having written a fair bit about dying recently, and with another post to come on the subject, not to mention some more medical posts, I’d first like to share an amusing anecdote from life at Transplant clinic… When attending Transplant … Continue reading

Posted in * Myeloma | Tagged , , , , , , , , | 3 Comments

18 month post-transplant review

Today is 18 months to the day after my allogeneic transplant. It’s my 18-month-iversary! I’m alive, pretty well for the most part, looking and feeling good. So today is worthy of a celebration, although it is more of a quiet … Continue reading

Posted in * Myeloma, Emotional health, Fun, play & adventure, Other health, Sleep apnoea, Work & volunteering, Writing | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 10 Comments

Joyeux anniversaire à moi!

I’ve done it! I’ve survived the first year post-allogeneic (unrelated donor) stem cell transplant. That’s really quite something to celebrate, especially as I’ve not just survived, but I’m doing pretty well… you might even say thriving! Thursday 16 May was … Continue reading

Posted in * Myeloma, Fun, play & adventure | Tagged , , , , , , | 32 Comments

Identity shift

On 16 April, I was eleven months post-transplant. That’s almost a year! And what a celebration I’m going to have for my one-year anniversary, on 16 May! But for now, I’m quite content with quietly appreciating how well things are … Continue reading

Posted in * Myeloma, Emotional health | Tagged , , , , , , , , , , , , , , , , , , | 13 Comments

The ‘C’ word

I’ve put off writing this post for a few weeks because I’ve been getting my own head around the ramifications, before sharing it with the world and having to deal with people’s reactions, as much as anything else. At my … Continue reading

Posted in * Myeloma | Tagged , , , , , , , , , , , , , | 24 Comments