Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: clinical trial
Myeloma UK Clinical Trials
From time to time, I receive email updates from Myeloma UK, covering a variety of topics. To be honest, usually I take a brief glance and delete them without further ado. I tend to leave the medical stuff to the … Continue reading
Posted in * Myeloma
Tagged clinical trial, Clinical Trial Network, myeloma, Myeloma UK, refractory, relpase, remission
12 Comments
A pity party? No, a damn good myeloma party!
A pity party is one “in which you spend your time feeling sorry for yourself and whining endlessly about how crappy your life is.” (as defined by Urban Dictionary). It would be very easy and understandable for any of us … Continue reading
Posted in * Myeloma, Emotional health, Fun, play & adventure
Tagged anger, autologous stem cell transplant, birthday, blog, blogging, Bortezomib, CC Smugglers, celebration, clinical trial, devastation, Disco 2000, fear, fundraising, hospice, Jarvis Cocker, myeloma forum, Myeloma UK, pain, peripheral neuropathy, picnic, pity party, positive attitude, remission, smouldering myeloma, stem cell, stem cell harvest, stem cell transplant, stem cells, support, transplant, treatment, Velcade
8 Comments
Some cycling, a phone call and a decision
Tuesday 14 June was a beautiful day, sun shining, 20 degrees, energy and eagerness abounding, so my friend and I took to our bikes and cycled to Elvaston Castle, where we found a secret (well, it felt like a secret) … Continue reading
Posted in * Myeloma
Tagged clinical trial, cycling, Hickman line, Revlimid, stem cell transplant
1 Comment
Shock, collapse… to curious surrender
Of course, I couldn’t fully take it in. What????? MYELOMA?! What is that? What has it to do with me? Cancer? Death? Illness? Disability? Disease? Forever? Incurable? They had let me go home on Sunday night – a night off! … Continue reading
jet black living... 