Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: immune system
Reactionary
Summertime, And the livin’ is easy Mosquitos are bitin’ And the cotton is high Paraphrased from George Gershwin Oh dear! These little fellas are causing me all kinds of problems. (I understand that it’s the male mosquitos who make that … Continue reading
Posted in Other health
Tagged allergic reaction, antihistamine, DEET, immune suppression, immune system, mosquito, repellent, steroid cream
12 Comments
Keeping my eye on the ball
One of the vulnerabilities for patients after a donor transplant is Pneumocystis pneumonia (PCP). According to Wiki: “Pneumocystis is commonly found in the lungs of healthy people, but, being a source of opportunistic infection, it can cause a lung infection in people with a weak … Continue reading
Posted in * Myeloma
Tagged allergic reaction, allogeneic stem cell transplant, anaphylaxis, antibiotic, co-trimoxazole, immune suppression, immune system, immunocompromised, Leukaemia, mini-allo, mortality, nebuliser, PCP, Pentamidine, pneumonia, prophylactic, Septrin, stem cell transplant, sulphonamides, suppressed immune system
14 Comments
Breaking a taboo
It’s taken me quite some time to dare to write this post; it feels like such an unmentionable topic. But, I’m coming out… I have genital warts. There, I’ve said it! Phew! But, don’t fear, I will NOT be posting … Continue reading
Posted in * Myeloma
Tagged Aciclovir, Aldara, aqueous cream, CMV, cryotherapy, cytomegalovirus, GUM, HPV, HSV, human papilomavirus, immune suppression, immune system, immunocompromised, infection, liquid nitrogen, Pentamidine, sexual health, suppressed immune system, taboo, virus, Warticon
7 Comments
Striving for Balance
Endeavouring to find balance seems to be my current new way of life… and doing a lot of wobbling in the process. On a medical level, the doctors have been striving for balance of the Ciclosporin (immune-suppressant) dosage. They needed to … Continue reading
“A walk in the park…”
These were the words uttered by my consultant a couple of weeks ago, in relation to my forthcoming allogeneic (donor) stem cell transplant… “It will be like a walk in the park compared to the autologous (my own cells) transplant.” … Continue reading
Posted in * Myeloma
Tagged allogeneic stem cell transplant, blood group, chemotherapy, chimerism, CMV, cytomegalovirus, DNA, donor stem cell transpant, Graft versus Host Disease, GvHD, immune suppression, immune system, immunocompromised, infection, irradiation, mini-allo, mini-SCT, MUD stem cell transplant, reduced intensity chemotherapy, rejection, suppressed immune system, total body irradiation
10 Comments
What happens next?
Although I’ve hinted, I’ve not yet written about what happens after this round of treatment on Velcade. Those of you with Myeloma or other blood cancers will know or guess what’s on the cards, but for the rest of you, … Continue reading
Posted in * Myeloma
Tagged allogeneic stem cell transplant, autologous stem cell transplant, Bortezomib, chimerism, donor stem cell transpant, immune system, Melphalan, mini-allo, mini-SCT, mustard gas, proteasome inhibitor, radiotherapy, reduced intensity chemotherapy, relapse, remission, Revlimid, RIC, SCT, stem cell rescue, tandem, total body irradiation, transplant, Vellcade
10 Comments
jet black living... 