Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: Zometa
18 month post-transplant review
Today is 18 months to the day after my allogeneic transplant. It’s my 18-month-iversary! I’m alive, pretty well for the most part, looking and feeling good. So today is worthy of a celebration, although it is more of a quiet … Continue reading →
Posted in * Myeloma, Emotional health, Fun, play & adventure, Other health, Sleep apnoea, Work & volunteering, Writing
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Tagged aching joints, Aciclovir, allogeneic stem cell transplant, anti-viral, antibiotic, antidepressant, bisphosphonates, blogging, blood count, bone densitometry, bone density scan, chimerism, Citizens' Eye Derby, CPAP, CT scan, dry eye, eosinophils, Eyebag, fatigue, Fluoxetine, Graft versus Host Disease, GvHD, knitting, lubricant eye drops, Lung function test, Maggies Centre, mammogram, Meibomian Gland Dysfunction, Menopace, menopause, mindfulness, mini-allo, MRI scan, mucous membrane, muscle flexibility, oestrogen, Omega 7, ONJ, osteonecrosis of the jaw, osteoporosis, Penicillin, physiotherapy, Playback, remission, runny nose, SCT, Sleep apnoea, smear test, spinal vertebrae, stem cell transplant, swimming, T'ai Chi, tight muscles, UARS, Vagifem, volunteering, writing, Zometa
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10 Comments
January 2013
January 2013 marks eight months post-transplant, so time for an update… I’m well and truly over the virus I had over New Year… and the accompanying anxiety. My blood counts remain good. I don’t even look at the results now. The … Continue reading →
Posted in * Myeloma
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Tagged Aciclovir, antidepressant, anxiety, blood test, cannula, cannulation, chemotherapy, chimerism, cryotherapy, dentist, depression, DLI, Donor Lymphocyte Infusion, fatigue, Fluoxetine, genital warts, Graft versus Host Disease, GUM, GvHD, immune system, insomnia, kidneys, Leukaemia, lymphocytes, Nottingham City Hospital, ONJ, oral GvHD, osteonecrosis of the jaw, Penicillin, Prozac, serum-free light chain, skin rash, stem cell transplant, teeth, transplant, Zoledronate, Zometa
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18 Comments
Velcade administration
Because I wrote the last update in a state of sleeplessness, I was bound to miss a few details, so this is just a quick appendix. As soon as Velcade was mentioned for treatment, I asked about receiving it subcutaneously, … Continue reading →
Posted in * Myeloma
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Tagged cannula, subcutaneous injection, subcutaneous licensing, The Big C, Velcade, Zometa
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4 Comments
Cold season
Yes, it’s winter and like many other people, I have a cold! I don’t have influenza and I don’t have pneumonia, and in fact, I have one of the mildest colds I’ve ever had… so far at any rate. This … Continue reading →
Posted in * Myeloma
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Tagged anaemic, anxiety, chemotherapy, fatigue, immune system, Revlimid, stem cell transplant, Zometa
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1 Comment
Four months along – update
On Sunday 4 December, it was exactly 4 months after the transplant of my stem cells and I’ve not written anything for a month, so it’s time for an update. You may recall I am on the Myeloma XI trial and … Continue reading →
Posted in * Myeloma
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Tagged bone marrow biopsy, clinical trial, death, dying, kappa:lambda ratio, life expectancy, maintenance, Myeloma XI trial, post-transplant, relapse, remission, Revlimid, Zometa
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10 Comments
Long time no write…
The days go by and turn into weeks and somehow I’ve not been motivated to write. It’s been hard to gather my thoughts and know what I want to say. Even harder to stay focused on one set of thoughts … Continue reading →
Posted in * Myeloma
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Tagged 24-hour urine sample, blood test, chemotherapy, confidence, cycling, drugs, fatigue, Haematology, hair, Hickman line, light chains, Revlimid, side effects, stem cell transplant, T'ai Chi, Zometa
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5 Comments
Finally… answers from my consultant
If you’ve been following this blog on a regular basis, you’ll be aware that I’ve recently had some “Grrrr!” moments of not hearing back from my consultants in response to an email I sent on 17 June. While I was on … Continue reading →
Posted in * Myeloma
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Tagged bisphosphonates, bone disease, calcium, Hypercalcaemia, kidneys, remission, stem cell transplant, Zometa
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1 Comment
Holey head!
Firstly, let me apologise for so many exclamatory postings… but that’s how it is just now. At least it’s not boring (I hope). I had an appointment with the consultant again on Monday… and received the results of my skeletal … Continue reading →
Posted in * Myeloma
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Tagged bisphosphonates, bone disease, calcium, fatigue, kidneys, lytic lesions, skeletal survey, x-ray, Zometa
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4 Comments
jet black living... 