Dancing in the rain
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: cycling
Some cycling, a phone call and a decision
Tuesday 14 June was a beautiful day, sun shining, 20 degrees, energy and eagerness abounding, so my friend and I took to our bikes and cycled to Elvaston Castle, where we found a secret (well, it felt like a secret) … Continue reading
Posted in * Myeloma
Tagged clinical trial, cycling, Hickman line, Revlimid, stem cell transplant
1 Comment
The backwardness of writing
Not sure what to call this entry, but I guess a title will occur to me once I see what I’ve written. I love the backwardness of writing… It feels like an age since I wrote anything, but just checking … Continue reading
Posted in Fun, play & adventure
Tagged cycling, Hickman line, lumens, stem cell transplant, T'ai Chi, writing
7 Comments
Mixed feelings and good results!
From previous posts, you’ll know that my blood and urine results have all been very positive. They take about two weeks to be sent away for analysis. So the other day I called Sarah, one of the specialist nurses at the … Continue reading
Posted in * Myeloma
Tagged cycling, Dexamethasone, Hickman line, stem cell transplant, steroids
2 Comments
Pollyanna?
I seem to be finding it hard to write about my feelings and the underside of what’s happening for me emotionally. The medical stuff is maybe upsetting or interesting to read (I’ll leave it to you to decide), but it’s … Continue reading
Confidence… and new growth
Only three weeks since diagnosis… feels like a lifetime. I am starting to feel a bit stronger, a bit more in control, a bit less terrified and shocked, a bit less overwhelmed by tiredness and the effects of the drugs, … Continue reading