Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: shock
Strange times
After a few celebratory posts about living, I need to return to the sleep apnoea saga… I know some of you are avidly awaiting the next instalment. However, first, I want to share something strange… Having returned my jet pack-styled … Continue reading
Posted in * Myeloma, Emotional health, Sleep apnoea
Tagged anger, Continuous Positive Airways Pressure, CPAP, fear, patient care, shock, Sleep apnoea, Snoring
13 Comments
Devastated!
Tuesday morning rolled in with a new, faint sense of excitement as finally I was going to my first counselling appointment with Mandy at the Maggies Centre that morning, and that afternoon I would be starting a PTLLS course (Preparing … Continue reading
Posted in * Myeloma, Emotional health
Tagged anger, anxiety, bone marrow biopsy, grief, light chains, Maggies Centre, PTLLS, relapse, remission, shock, unfair
15 Comments
Shock, collapse… to curious surrender
Of course, I couldn’t fully take it in. What????? MYELOMA?! What is that? What has it to do with me? Cancer? Death? Illness? Disability? Disease? Forever? Incurable? They had let me go home on Sunday night – a night off! … Continue reading
First, a bit of history…
Summer 2010 I experienced a lot of upper/middle backache which seemed to move around. As soon as one ache disappeared, another appeared elsewhere. At the same time, my appetite was decreasing more and more and I am someone who really … Continue reading
jet black living... 