Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: insomnia
Just when you think it’s safe…
It’s over 7 months since the transplant and I’ve been very lucky… 100% chimerism, undetectable myeloma, very mild GvHD and no serious infections. Until now… For the past three days I’ve had an increasingly painful sore throat, with a phlegmy … Continue reading
Rituximab
No, this is not a high-scoring Scrabble word. If it were, it’d be worth 20 points… 40 on a Double Word. If I managed to get the X to land on a Triple Letter, it’d go up to 72, plus … Continue reading
Posted in * Myeloma
Tagged cannulation, Dexamethasone, Graft versus Host Disease, GvHD, insomnia, IV infusion, Paracetamol, Piriton, Prednisolone, Rituximab, Sleep, steroid, transplant, transplant rejection
4 Comments
Blame it on the Dex… and other effects
The joys of Dex! I’m now off all medication – not even taking any vitamins or supplements – I just wanted a break before the next round of treatment and medication starts. I started writing this quite a few weeks ago … Continue reading
Awake again…
Here I am, awake again at 06:16 on Monday morning… after a couple of hours of lying in bed awake, with my mind so very alive, even though my body could happily sleep. Yes, I’m on the Dexamethasone (steroids) – … Continue reading
jet black living... 