Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: Haematology
Blurred lines…?
So, with my new resolve to write shorter, more frequent posts, here’s the next one… My Hickman line half fell out on Friday 13 June. I don’t believe the date was to blame. I do wonder though, if perhaps nurse … Continue reading
Posted in * Myeloma, Graft versus Host Disease
Tagged amnesia, anchor, Bed Manager, Brighton, cannula, cannulation, central line, Cetirizine, chronic GvHD, Cluedo, conscious, cuff, Daycase, diarrhoea, ECP, extracorporeal photopheresis, GvHD, Haematology, Hickman line, infection, infection risk, lumens, lung GvHD, mosquito bite reaction, nurse, observation, PICC line, Piriton, radiologist, radiology, sclerodermatous GvHD, sedation, sickness, skin GvHD, SSSU, Surgical Short Stay Unit, The Ceramic House, thermometer, tubogram, unconsciou, vomit
3 Comments
Recording my anniversary
I’ve not written a blog post for ages. Lots of stuff, both medical and fun, has happened and is happening. Nothing serious or life-threatening on the medical side, although the visit from the Critical Care Unit nurse while I was … Continue reading
Posted in * Myeloma, Fun, play & adventure
Tagged afternoon tea, allo, allogeneic, anniversary, Anthony Nolan, blog, blogging, campaign, Chatsworth, Haematology, late effects, London, mini-allo, NHS England, Paris, respiratory, RIC allo, SCT, stem cell transplant, Video, World Service Nottingham
8 Comments
Infection alert!
Friday morning, 4 April, saw me not-quite-leaping, more like cautiously rolling my stiff self, out of bed at an early hour to go off to volunteer at a Register & Be A Lifesaver [R&BE] stem cell register recruitment event at … Continue reading
Posted in * Myeloma, Graft versus Host Disease, Other health
Tagged Anthony Nolan, antibiotic, Certificate in Playback Theatre Practice, Chellaston Academy, Derby, endocarditis, Fletcher ward, Flucloxacillin, Haematology, Hickman line, hospital, infection, IV antibiotics, Jenny Parrish, myeloma, Nightstop, Nottingham City Hospital, osteomyelitis, Playback, Playback Theatre, pneumonia, R&BE, Register & Be a Lifesaver, School of Playback Theatre UK, Specialist Receiving Unit, SRU, staph. aureus, staphylococcus aureus, stem cell donor, stem cell register, temperature, Vancomycin, volunteer, volunteering
6 Comments
Drug dealing
Before I overwhelm you and me both with all that’s been happening medically in the last few weeks/months (if I ever get around to actually writing it up)… I’d like to share a bit of naughtiness I got up to … Continue reading
Posted in * Myeloma
Tagged allogeneic stem cell transplant, autistic, Cheers!, corset designer, drugs, graft, GvHD, Haematology, hospital corridors, Leukaemia, lymphoma, medication, naughty, needles, Nottingham City Hospital, pharmacy, sharps, STC, stem cell transplant, tablets, transplant clinic
9 Comments
A comic moment in clinic
Having written a fair bit about dying recently, and with another post to come on the subject, not to mention some more medical posts, I’d first like to share an amusing anecdote from life at Transplant clinic… When attending Transplant … Continue reading
Posted in * Myeloma
Tagged allogeneic, Dr Chris Fox, Dr Jenny Byrne, Haematology, mini-allo, Nottingham, Prof Russell, stem cell transplant, transplant clinic
3 Comments
Just when you think it’s safe…
It’s over 7 months since the transplant and I’ve been very lucky… 100% chimerism, undetectable myeloma, very mild GvHD and no serious infections. Until now… For the past three days I’ve had an increasingly painful sore throat, with a phlegmy … Continue reading
Up to the minute news… stem cell harvest is GO!
I had a hospital appointment this morning and it’s all systems go with the stem cell harvest. The first date they’ve given me is Thursday 9 June, when they’ll give me an initial chemotherapy treatment as an overnight patient. This … Continue reading
Posted in * Myeloma
Tagged Cancer, chemotherapy, Cyclophosphamide, drugs, Haematology, Hickman line, immune system, Melphalan, stem cell transplant
7 Comments
Let’s talk about hair…
We all have some sort of emotional response about our hair. Women possibly more than men. We style it, cut it, shape it, straighten it, curl it, colour it, put it up in a pony tail or bunches, plait it, … Continue reading
Myeloma Info Day
When I was first diagnosed, I heard about Info Days which Myeloma UK offer at venues around the UK to provide patients, family, friends and other supporters with information about the disease, treatment and forthcoming news for people with the … Continue reading
jet black living... 