Dancing in the rain
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: Hickman line
Blurred lines…?
So, with my new resolve to write shorter, more frequent posts, here’s the next one… My Hickman line half fell out on Friday 13 June. I don’t believe the date was to blame. I do wonder though, if perhaps nurse … Continue reading
Posted in * Myeloma, Graft versus Host Disease
Tagged amnesia, anchor, Bed Manager, Brighton, cannula, cannulation, central line, Cetirizine, chronic GvHD, Cluedo, conscious, cuff, Daycase, diarrhoea, ECP, extracorporeal photopheresis, GvHD, Haematology, Hickman line, infection, infection risk, lumens, lung GvHD, mosquito bite reaction, nurse, observation, PICC line, Piriton, radiologist, radiology, sclerodermatous GvHD, sedation, sickness, skin GvHD, SSSU, Surgical Short Stay Unit, The Ceramic House, thermometer, tubogram, unconsciou, vomit
3 Comments
Infection alert!
Friday morning, 4 April, saw me not-quite-leaping, more like cautiously rolling my stiff self, out of bed at an early hour to go off to volunteer at a Register & Be A Lifesaver [R&BE] stem cell register recruitment event at … Continue reading
Posted in * Myeloma, Graft versus Host Disease, Other health
Tagged Anthony Nolan, antibiotic, Certificate in Playback Theatre Practice, Chellaston Academy, Derby, endocarditis, Fletcher ward, Flucloxacillin, Haematology, Hickman line, hospital, infection, IV antibiotics, Jenny Parrish, myeloma, Nightstop, Nottingham City Hospital, osteomyelitis, Playback, Playback Theatre, pneumonia, R&BE, Register & Be a Lifesaver, School of Playback Theatre UK, Specialist Receiving Unit, SRU, staph. aureus, staphylococcus aureus, stem cell donor, stem cell register, temperature, Vancomycin, volunteer, volunteering
6 Comments
Vlog #2: Admitted to hospital
I’ve just spent eight days in hospital due to a serious infection via my Hickman line. I’m in the midst of writing about it, but having difficulty concentrating, so it may take some time. In the meantime, here’s a little … Continue reading
2013 in review – just because I can!
The WordPress.com stats helper monkeys prepared a 2013 annual report for this blog. Thank you all for reading, following and commenting. I began this blog mostly for me, but things change and with the positive feedback from readers, I now … Continue reading
Posted in * Myeloma
Tagged allogeneic stem cell transplant, blogging, boil, Hickman line, PICC line, statistics, WordPress
3 Comments
The transplant process starts here…
Last week I was in the Netherlands, where I found myself in a weird detached state, not able/wanting to fully interact with the people around me. This was partly due to spending a lot of time not understanding what was … Continue reading
A-harvesting we go…
After a preliminary blood test on Friday 24 June, which showed that my white blood count was only 0.47, they asked me to come back into the hospital on Monday, by which time, the count needed to be over 1. … Continue reading
Posted in * Myeloma
Tagged blood count, blood test, blood transfusion, Hickman line, irradiated blood, stem cell
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Some cycling, a phone call and a decision
Tuesday 14 June was a beautiful day, sun shining, 20 degrees, energy and eagerness abounding, so my friend and I took to our bikes and cycled to Elvaston Castle, where we found a secret (well, it felt like a secret) … Continue reading
Posted in * Myeloma
Tagged clinical trial, cycling, Hickman line, Revlimid, stem cell transplant
1 Comment
The backwardness of writing
Not sure what to call this entry, but I guess a title will occur to me once I see what I’ve written. I love the backwardness of writing… It feels like an age since I wrote anything, but just checking … Continue reading
Posted in Fun, play & adventure
Tagged cycling, Hickman line, lumens, stem cell transplant, T'ai Chi, writing
7 Comments
Date changes & details
I’ve just had a call from Sarah at the hospital. The first date the Radiology department can fit my Hickman line is Wed 15 June. This means that the whole stem cell harvest process needs to be put back one … Continue reading
Posted in * Myeloma
Tagged chemotherapy, Hickman line, kidneys, positive attitude, side effects, stem cell transplant
4 Comments