Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: living
Not normal
Friends, family, acquaintances, fellow cancer patients, the public at large see me running around, having fun, being busy, volunteering, travelling, visiting friends, driving a big fancy new car that I could not afford without a Motability lease, going out to … Continue reading
Posted in * Myeloma
Tagged abnormal, acceptance, Aciclovir, Alendronic acid, Azithromycin, dry eye, expert patient, eye drops, Eyebag, Fluoxetine, Graft versus Host Disease, GvHD, Lansoprazole, life, living, Lucralube, lung GvHD, Menopace Plus, Motability, normal, Nystatin, Omega 7, Penicillin, Posaconazole, Prednisolone, sclerodermatous GvHD, shiock, steroids, Systane Ultra, Vagifem
20 Comments
Sea-salted star-stuff… gifts and miracles
“The cosmos is within us. We are made of star-stuff. We are a way for the universe to know itself.” ― Carl Sagan I’d like to share something written by my friend Rebecca (with an acknowledged nod to Carl Sagan), who is still in … Continue reading
Posted in Miscellaneous
Tagged allogeneic stem cell transplant, Anthony Nolan, Australian Bone Marrow Donor Registry, Be the Match, Bone Marrow Registry, Carl Sagan, Delete Blood Cancer, ethnic background, Ezer Mizion Bone Marrow Donor Registry, fear, Héma-Québec, Jewish, living, lympoma, miracle, MUD stem cell transplant, One Match, Sephardi, stem cell donation, stem cell donor, stem cell transplant, stem cells
3 Comments
Apologies
Two weeks ago, I invited readers to ask me questions or to ask me to write about something in particular. I’ve had a few responses, for which I’m very grateful. Thank you to those who responded for your contributions. This … Continue reading
Posted in Miscellaneous
Tagged blogging, Cancer, Liebster Award, living, living with questions, relief, surrender, treatment, uncertainty
4 Comments
The ‘C’ word
I’ve put off writing this post for a few weeks because I’ve been getting my own head around the ramifications, before sharing it with the world and having to deal with people’s reactions, as much as anything else. At my … Continue reading
jet black living... 