Dancing in the rain
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: mindfulness
Welcome to the breasts, balls and bone blood gang
We met at a Mindfulness course at the Maggie’s Centre in Nottingham. I will write separately about the course, what I got from it and how I use mindfulness in my life these days – that deserves a whole post … Continue reading →
Posted in * Myeloma, Fun, play & adventure
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Tagged advanced cancer, balls, blood, bone, breast cancer, Cadbury's fruit and nut, cloves, creativity, death, dying, friendship, knitting, living, Maggies Centre, mindfulness, Occupational Therapy, orange, pomander, prostate cancer, secondary cancer, singing, slipped disc, support, terminal cancer, Terry's chocolate orange
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7 Comments
Mindful dying query
While I was on a roll, talking about death and dying, meditation and mindfulness, I have a query that I hope you may be able to help solve. I recall hearing a story or a piece … Continue reading →
Posted in * Myeloma, Emotional health
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Tagged death, dying, Let's Talk - Wellbeing, Maggies Centre, meditation, mindfulness, Nottingham, pain relief
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1 Comment
A meditative death
I found this post today on the InterDependence Project‘s blog, written by Nancy Thompson, about how Lou Reed died. (The InterDependence Project is a secular Buddhist Centre in New York). I want to share it for anyone else facing their own death … Continue reading →
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Posted in * Myeloma
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Tagged Buddhism, Cancer, death, dying, InterDependence Project, Laurie Anderson, living, Lou Reed, love, meditation, mindfulness, Rolling Stone, sadness, T'ai Chi, terminal illness
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8 Comments
18 month post-transplant review
Today is 18 months to the day after my allogeneic transplant. It’s my 18-month-iversary! I’m alive, pretty well for the most part, looking and feeling good. So today is worthy of a celebration, although it is more of a quiet … Continue reading →
Posted in * Myeloma, Emotional health, Fun, play & adventure, Other health, Sleep apnoea, Work & volunteering, Writing
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Tagged aching joints, Aciclovir, allogeneic stem cell transplant, anti-viral, antibiotic, antidepressant, bisphosphonates, blogging, blood count, bone densitometry, bone density scan, chimerism, Citizens' Eye Derby, CPAP, CT scan, dry eye, eosinophils, Eyebag, fatigue, Fluoxetine, Graft versus Host Disease, GvHD, knitting, lubricant eye drops, Lung function test, Maggies Centre, mammogram, Meibomian Gland Dysfunction, Menopace, menopause, mindfulness, mini-allo, MRI scan, mucous membrane, muscle flexibility, oestrogen, Omega 7, ONJ, osteonecrosis of the jaw, osteoporosis, Penicillin, physiotherapy, Playback, remission, runny nose, SCT, Sleep apnoea, smear test, spinal vertebrae, stem cell transplant, swimming, T'ai Chi, tight muscles, UARS, Vagifem, volunteering, writing, Zometa
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10 Comments
Pollyanna?
I seem to be finding it hard to write about my feelings and the underside of what’s happening for me emotionally. The medical stuff is maybe upsetting or interesting to read (I’ll leave it to you to decide), but it’s … Continue reading →
Posted in Emotional health
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Tagged Cancer, cycling, mindfulness, pain, positive attitude
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5 Comments