Dancing in the rain
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- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
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- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
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- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Author Archives: Jet Black
Not Fade Away
I was driving along the M25 earlier today, heading for the Dartford Crossing, heading for Folkestone, heading for Le Shuttle (rebranding!), heading for France, when a Who song came on my playlist, with the lyric: “why don’t you all just … Continue reading
Posted in * Myeloma
6 Comments
Twelve years
Today is the twelve year anniversary of my diagnosis and my whole life being changed irrevocably, but not as one might imagine, badly. I keep on living and I continue to stay in remission. Hurrah! I outlived my mother, who … Continue reading
Posted in * Myeloma
13 Comments
And then it got me!
After over two years of caution and care, isolation and anxiety, the minute, truly the day I decided to drop my guard, not even entirely, just slightly… Covid got me! I went to Sheffield to see art and a friend. … Continue reading
Posted in * Myeloma
9 Comments
Ten year transplant anniversary reflections
Today, Monday 16 May, is the ten year anniversary of my stem cell transplant. I’m still here – over eleven years after diagnosis, still in complete remission. There’s really not a lot more to say. I celebrated an unexpected ten … Continue reading
Posted in * Myeloma
6 Comments
I’m a Survivor!
“The meaning of life is just to be alive. It is so plain and so obvious and so simple. And yet, everybody rushes around in a great panic as if it were necessary to achieve something beyond themselves.” – Alan … Continue reading
Dancing in the rain
“Learning that life isn’t about waiting for the storm to pass, it’s about dancing in the rain.” That sentence is the byline of my blog. I have to admit that it’s been a lie in the most literal respect, as … Continue reading
Posted in * Myeloma
6 Comments
Seven years
This anniversary post is to recognise that I’m still here, in remission, seven years on from the day (4 February 2011) when I was first diagnosed. In that time I have seen a number of friends die, from myeloma, leukaemia, … Continue reading
Posted in * Myeloma
18 Comments
The last post…?
Last Saturday was a huge day in my life history calendar. Six years ago I was diagnosed with multiple Myeloma. Each year that passes makes that day, 4 Feb 2011, more and more significant and makes me more aware how lucky … Continue reading
Destination: Cure – “it can only grow from here”
In July I attended a Reception for the All Party Parliamentary Group on stem cell transplantation at the Houses of Parliament. This is a group of MPs who support, campaign around and are interested in stem cell transplants, at a … Continue reading
Posted in * Myeloma
Tagged A Road Map for Recovery, All Party Parliamentary Group on stem cell transplantation, allogeneic stem cell transplant, Anna Soubry MP, Anthony Nolan, APPG, blood donating, Bone Marrow Registry, David Burrowes MP, Delete Blood Cancer, Destination Cure, Graft versus Host Disease, GvHD, Houses of Parliament, stem cell register
1 Comment
Relatively normal
Oh my goodness, how long has it been since I properly wrote anything here? Those of you who are distant strangers may well have feared that I was no longer around. I am! I am still very … Continue reading
Posted in * Myeloma
Tagged Aciclovir, allo, allogeneic stem cell transplant, anxiety, auto, autologous stem cell transplant, Azithromycin, Becotide, Cancer, Chondroitin, cramp, ECP, extracorporeal photopheresis, Glucosamine, Graft versus Host Disease, GvHD, Imatinib, joint pain, lucky, lungs, normal, Omeprazole, Penicillin, Prednisolone, respiratory, scleroderma
18 Comments