Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
Facebook groups
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Aciclovir allogeneic stem cell transplant anniversary Anthony Nolan antibiotic anxiety autologous stem cell transplant blog blogging blood count blood test bone disease bone marrow biopsy Cancer cannula cannulation chemotherapy chimerism clinical trial confidence CPAP cycling death depression Dexamethasone donor stem cell transpant drugs dying fatigue fear Fluoxetine Graft versus Host Disease GvHD Haematology Hickman line immune suppression immune system immunocompromised infection insomnia Jewish kidneys Leukaemia light chains list for living living Maggies Centre Melphalan mindfulness mini-allo myeloma Myeloma UK Penicillin positive attitude Prednisolone relapse remission Revlimid SCT shock side effects Sleep Snoring stem cell transplant steroids suppressed immune system T'ai Chi total body irradiation transplant Velcade Video volunteering writing x-ray Zometa
Tag Archives: Revlimid
What happens next?
Although I’ve hinted, I’ve not yet written about what happens after this round of treatment on Velcade. Those of you with Myeloma or other blood cancers will know or guess what’s on the cards, but for the rest of you, … Continue reading
Posted in * Myeloma
Tagged allogeneic stem cell transplant, autologous stem cell transplant, Bortezomib, chimerism, donor stem cell transpant, immune system, Melphalan, mini-allo, mini-SCT, mustard gas, proteasome inhibitor, radiotherapy, reduced intensity chemotherapy, relapse, remission, Revlimid, RIC, SCT, stem cell rescue, tandem, total body irradiation, transplant, Vellcade
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Glimmers of hope
Another consultant appointment on Monday, this one with Dr Cathy Williams, just because I can choose and I haven’t seen her for a while. It’s nice that we can choose who we see – a bit of patient control. In … Continue reading
The next stage… maintenance
I was at the clinic again on Monday (24/10) and happy to see Dr Jenny Byrne rather than the Prof. Now I’m three months post-transplant, it’s time to start the maintenance medication, so I collected the first of what will … Continue reading
Some cycling, a phone call and a decision
Tuesday 14 June was a beautiful day, sun shining, 20 degrees, energy and eagerness abounding, so my friend and I took to our bikes and cycled to Elvaston Castle, where we found a secret (well, it felt like a secret) … Continue reading
Posted in * Myeloma
Tagged clinical trial, cycling, Hickman line, Revlimid, stem cell transplant
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