Tag Archives: Revlimid

What happens next?

Although I’ve hinted, I’ve not yet written about what happens after this round of treatment on Velcade. Those of you with Myeloma or other blood cancers will know or guess what’s on the cards, but for the rest of you, … Continue reading

Posted in * Myeloma | Tagged , , , , , , , , , , , , , , , , , , , , , , | 10 Comments

Glimmers of hope

Another consultant appointment on Monday, this one with Dr Cathy Williams, just because I can choose and I haven’t seen her for a while. It’s nice that we can choose who we see – a bit of patient control. In … Continue reading

Posted in * Myeloma | Tagged , , | 3 Comments

Cold season

Yes, it’s winter and like many other people, I have a cold! I don’t have influenza and I don’t have pneumonia, and in fact, I have one of the mildest colds I’ve ever had… so far at any rate. This … Continue reading

Posted in * Myeloma | Tagged , , , , , , , | 1 Comment

Four months along – update

On Sunday 4 December, it was exactly 4 months after the transplant of my stem cells and I’ve not written anything for a month, so it’s time for an update. You may recall I am on the Myeloma XI trial and … Continue reading

Posted in * Myeloma | Tagged , , , , , , , , , , , , | 10 Comments

The next stage… maintenance

I was at the clinic again on Monday (24/10) and happy to see Dr Jenny Byrne rather than the Prof. Now I’m three months post-transplant, it’s time to start the maintenance medication, so I collected the first of what will … Continue reading

Posted in * Myeloma | Tagged | 3 Comments

Long time no write…

The days go by and turn into weeks and somehow I’ve not been motivated to write. It’s been hard to gather my thoughts and know what I want to say. Even harder to stay focused on one set of thoughts … Continue reading

Posted in * Myeloma | Tagged , , , , , , , , , , , , , , , | 5 Comments

Some cycling, a phone call and a decision

Tuesday 14 June was a beautiful day, sun shining, 20 degrees, energy and eagerness abounding, so my friend and I took to our bikes and cycled to Elvaston Castle, where we found a secret (well, it felt like a secret) … Continue reading

Posted in * Myeloma | Tagged , , , , | 1 Comment

Confidence and identity…

I’ve become aware that my sense of myself has noticeably changed in the past few months. Initially I was just ill, feeble and felt like I was close to death, so almost no sense of myself, except as an expiring worried … Continue reading

Posted in Emotional health | Tagged , , , , , , , , | 2 Comments

No umbrella… no dancing shoes…

I recently added the tagline to my front page: “My life with Myeloma… And learning that life isn’t about waiting for the storm to pass, it’s about dancing in the rain.” Sounds great, doesn’t it? So spiritually aware and positive?! … Continue reading

Posted in Emotional health | Tagged , , , , , | 2 Comments

Cocktail anyone…?

So… I was invited to take part in a clinical trial for the treatment of myeloma. The trial is a randomised comparison between the currently used combination of drugs and a newer, hopefully more effective set. The main benefit of … Continue reading

Posted in * Myeloma | Tagged , , , , , , , , | 3 Comments