Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
-
-
Recent Posts
Archives
Links
* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
Facebook groups
Tags
- Aciclovir
- allogeneic stem cell transplant
- anniversary
- Anthony Nolan
- antibiotic
- anxiety
- autologous stem cell transplant
- blog
- blogging
- blood count
- blood test
- bone disease
- bone marrow biopsy
- Cancer
- cannula
- cannulation
- chemotherapy
- chimerism
- clinical trial
- confidence
- CPAP
- cycling
- death
- depression
- Dexamethasone
- donor stem cell transpant
- drugs
- dying
- fatigue
- fear
- Fluoxetine
- Graft versus Host Disease
- GvHD
- Haematology
- Hickman line
- immune suppression
- immune system
- immunocompromised
- infection
- insomnia
- Jewish
- kidneys
- Leukaemia
- light chains
- list for living
- living
- Maggies Centre
- Melphalan
- mindfulness
- mini-allo
- myeloma
- Myeloma UK
- Penicillin
- positive attitude
- Prednisolone
- relapse
- remission
- Revlimid
- SCT
- shock
- side effects
- Sleep
- Snoring
- stem cell transplant
- steroids
- suppressed immune system
- T'ai Chi
- total body irradiation
- transplant
- Velcade
- Video
- volunteering
- writing
- x-ray
- Zometa
Tag Archives: fatigue
The last post…?
Last Saturday was a huge day in my life history calendar. Six years ago I was diagnosed with multiple Myeloma. Each year that passes makes that day, 4 Feb 2011, more and more significant and makes me more aware how lucky … Continue reading
Identity shift
On 16 April, I was eleven months post-transplant. That’s almost a year! And what a celebration I’m going to have for my one-year anniversary, on 16 May! But for now, I’m quite content with quietly appreciating how well things are … Continue reading
Posted in * Myeloma, Emotional health
Tagged allogeneic stem cell transplant, anxiety, appetite, back pain, disabled, energy, fatigue, identity, mini-allo, remission, responsibility, stamina, stem cell transplant, stronger, surrender, transplant, trust, Wales, work
13 Comments
Tender bits
Yes, I know I’m not supposed to write about this most intimate of subjects, but I’ve done it once, so I’m not going to avoid it now. And don’t think I wasn’t tempted, but if you know me, you’ll know … Continue reading
Posted in * Myeloma
Tagged aqueous cream, candida, cervix, clotrimazole, cryotherapy, dentist, dry skin, Duraphat, fatigue, fluoride, genital warts, genito-urinary medicine, Graft versus Host Disease, GUM, GvHD, gynaecology, herpes, HRT, menopause, mucous membrane, oestrogen, pessary, Prednisalone, swab, thrush, toothpaste, vagina, vaginal GvHD
16 Comments
Travellin’ shoes
Norway was amazing. My worries and anxieties came to nought in the end. I was never cold and only fell over once, in lovely soft snow. All the gear I bought did exactly what was required. Ice grippers are a … Continue reading
Posted in * Myeloma
Tagged anxiety, confidence, Dexamethasone, fatigue, Graft versus Host Disease, GvHD, holiday, kidney impairment, pre-existing condition, remission, steroids, travel, travel insurance, vacation
13 Comments
Resting
I’ve been busy. I’ve been very busy. Although it may not seem like it, even to me, I’m doing a lot for someone at this point in recovery. And that’s the crucial point! It’s easy to think, over eight months … Continue reading
Posted in * Myeloma
Tagged anxiety, depression, fatigue, Sleep, stem cell transplant, transplant, volunteering, writing
23 Comments
jet black living... 