Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: light chains
Boiling down south
Sadly, the title of this post bears no relation to weather conditions up north, down south or otherwise… I’d have to go a lot further south. On Tuesday, I was driving down the M1 while the non-drama of my light … Continue reading
Posted in * Myeloma
Tagged abscess, antibiotic, bitter taste, Clarithromycin, Easter, Inadine, infection, lance, lancing, latex gloves, light chains, local anaesthetic, minor operation, saline solution, Viva Lewes, wound, wound packing
4 Comments
Devastated!
Tuesday morning rolled in with a new, faint sense of excitement as finally I was going to my first counselling appointment with Mandy at the Maggies Centre that morning, and that afternoon I would be starting a PTLLS course (Preparing … Continue reading
Posted in * Myeloma, Emotional health
Tagged anger, anxiety, bone marrow biopsy, grief, light chains, Maggies Centre, PTLLS, relapse, remission, shock, unfair
15 Comments
Further clarity… for the geeks out there!
I found that the results and technical data I put in my blog were a bit confusing – to me, never mind you lot! So I called Jenny, the specialist nurse again today to get clear. For those of you … Continue reading
Posted in * Myeloma
Tagged 24-hour urine sample, kappa light chain, lambda light chain, light chains, paraprotein
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Good results
I’ve just spoken to one of the specialist nurses to get the results of my most recent 24-hour urine sample. Well, that’s a whole other thing… I have to take home a 2.5 litre plastic container, in a very discreet … Continue reading
Posted in * Myeloma
Tagged 24-hour urine sample, Cancer, light chains, stem cell transplant
2 Comments
jet black living... 