Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: kidneys
Six months on
16 November marked six months post-transplant, so time for a quick update. And it’s mostly good news… The frequency of my clinic appointments is going down, as is the number of drugs I’m now taking. When I first came out … Continue reading
Posted in * Myeloma
Tagged Aciclovir, allogeneic stem cell transplant, blood test, Budesonide, Ciclosporin, CMV, Difflam, Elugel, FBC, Fluoxetine, genital warts, GvHD, kidneys, Nystatin, oral thrush, Penicillin, Pentamidine, Prednisolone, Prozac, serum-free light chain, sore mouth, Tacrolimus, transplant, U&E
5 Comments
Wed SCT Day -1
This is apparently Day -1… hospital terminology for the day before the stem cells are transplanted. It’s actually the early hours of Day 0, as I’m awake in the middle of the night. (SCT = Stem Cell Transplant). Day -1 … Continue reading
Date changes & details
I’ve just had a call from Sarah at the hospital. The first date the Radiology department can fit my Hickman line is Wed 15 June. This means that the whole stem cell harvest process needs to be put back one … Continue reading
Posted in * Myeloma
Tagged chemotherapy, Hickman line, kidneys, positive attitude, side effects, stem cell transplant
4 Comments
Hospital appointments and good results
This week I had two hospital appointments. Monday was Haematology, Tuesday was Renal. Monday was a quick in and out, blood test and seeing the consultant who seemed very busy and didn’t chat. Tuesday was a bit more relaxed and … Continue reading
Posted in * Myeloma
Tagged blood test, GFR, Haematology, kidneys, language, paraprotein, stem cell transplant
2 Comments
Hospital appointment today
I went back to see my kidney consultant again today. Following last week’s blood test, my calcium levels are now so low that he has prescribed me to take Calcichew. I then went to see my Haematology specialist nurse for … Continue reading
jet black living... 