Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: life expectancy
Four years on
As you’ll be aware if you’re a regular reader, there hasn’t been much ‘regular’ reading going on here for some time. But, today is the four year anniversary of my myeloma diagnosis, so it warrants acknowledgement at the very least. … Continue reading →
Posted in * Myeloma
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Tagged anniversary, blog, blogging, Cancer, death, death rates, Deborah Bone, diagnosis, Dial M for Myeloma, Disco 2000, dying, ECP, extra-corporeal photopheresis, eyes, family, flight, flying, Graft versus Host Disease, gut, GvHD, incurable, life expectancy, lungs, mortality, mouth, myeloma, Myeloma Survival, Prednisolone, Pulp, scleroderma, steroids, travel insurance, USA, vagina, Welcome to the Parallel Universe
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17 Comments
Four months along – update
On Sunday 4 December, it was exactly 4 months after the transplant of my stem cells and I’ve not written anything for a month, so it’s time for an update. You may recall I am on the Myeloma XI trial and … Continue reading →
Posted in * Myeloma
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Tagged bone marrow biopsy, clinical trial, death, dying, kappa:lambda ratio, life expectancy, maintenance, Myeloma XI trial, post-transplant, relapse, remission, Revlimid, Zometa
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10 Comments
jet black living... 