Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: blood test
Nothing to worry about…
That’s what he said… the bloke who called me from the hospital on Mon 31 Jan 2011… “This is the blood lab at the hospital. There’s nothing to worry about.” WHAAAAAT?????? I’d just had one of the weekly blood tests … Continue reading
Posted in * Myeloma
Tagged anaemic, blood test, EPO, Erythropoietin, haemoglobin, Hypercalcaemia, multiple myeloma
22 Comments
Six months on
16 November marked six months post-transplant, so time for a quick update. And it’s mostly good news… The frequency of my clinic appointments is going down, as is the number of drugs I’m now taking. When I first came out … Continue reading
Posted in * Myeloma
Tagged Aciclovir, allogeneic stem cell transplant, blood test, Budesonide, Ciclosporin, CMV, Difflam, Elugel, FBC, Fluoxetine, genital warts, GvHD, kidneys, Nystatin, oral thrush, Penicillin, Pentamidine, Prednisolone, Prozac, serum-free light chain, sore mouth, Tacrolimus, transplant, U&E
5 Comments
Glimmers of hope
Another consultant appointment on Monday, this one with Dr Cathy Williams, just because I can choose and I haven’t seen her for a while. It’s nice that we can choose who we see – a bit of patient control. In … Continue reading
Blood results graphs
When I went to clinic on 5 September, they gave me a copy of these graphs which show my blood results over the past six months. The green band is the normal range in each graph. If you click on … Continue reading
Posted in * Myeloma
Tagged blood count, blood test, chemotherapy, fatigue, immune system, stem cell transplant
3 Comments
Sat-Mon SCT Days 9-11
I feel limp and miserable. My nights are punctuated by trips to the toilet, more often than not leaking en route. I don’t have any control and often don’t even feel it happening. It just seems to pour out of … Continue reading
Thu & Fri SCT Days 7 & 8
Thu: Despite my mouth feeling so awful and how hard it is for me to swallow, I’m not feeling as bad today as I did yesterday. Not feeling very lively though. Got my blood results Thu afternoon. I’ve updated the results … Continue reading
Wed SCT Day 6
I’m feeling really low today. Diarrhoeia every time I move and my throat feels almost closed, mouth is sore and coated. I don’t feel like writing or talking. They’re giving me lots of pills and potions to help, but it’s … Continue reading
jet black living... 