Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
-
-
Recent Posts
Archives
Links
* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
Facebook groups
Tags
- Aciclovir
- allogeneic stem cell transplant
- anniversary
- Anthony Nolan
- antibiotic
- anxiety
- autologous stem cell transplant
- blog
- blogging
- blood count
- blood test
- bone disease
- bone marrow biopsy
- Cancer
- cannula
- cannulation
- chemotherapy
- chimerism
- clinical trial
- confidence
- CPAP
- cycling
- death
- depression
- Dexamethasone
- donor stem cell transpant
- drugs
- dying
- fatigue
- fear
- Fluoxetine
- Graft versus Host Disease
- GvHD
- Haematology
- Hickman line
- immune suppression
- immune system
- immunocompromised
- infection
- insomnia
- Jewish
- kidneys
- Leukaemia
- light chains
- list for living
- living
- Maggies Centre
- Melphalan
- mindfulness
- mini-allo
- myeloma
- Myeloma UK
- Penicillin
- positive attitude
- Prednisolone
- relapse
- remission
- Revlimid
- SCT
- shock
- side effects
- Sleep
- Snoring
- stem cell transplant
- steroids
- suppressed immune system
- T'ai Chi
- total body irradiation
- transplant
- Velcade
- Video
- volunteering
- writing
- x-ray
- Zometa
Tag Archives: diagnosis
Four years on
As you’ll be aware if you’re a regular reader, there hasn’t been much ‘regular’ reading going on here for some time. But, today is the four year anniversary of my myeloma diagnosis, so it warrants acknowledgement at the very least. … Continue reading →
Posted in * Myeloma
|
Tagged anniversary, blog, blogging, Cancer, death, death rates, Deborah Bone, diagnosis, Dial M for Myeloma, Disco 2000, dying, ECP, extra-corporeal photopheresis, eyes, family, flight, flying, Graft versus Host Disease, gut, GvHD, incurable, life expectancy, lungs, mortality, mouth, myeloma, Myeloma Survival, Prednisolone, Pulp, scleroderma, steroids, travel insurance, USA, vagina, Welcome to the Parallel Universe
|
17 Comments
The sadness of so many losses
I began writing this a couple of months ago but didn’t finish the draft I’d started. Today though I’ve been reminded again of the sadness of loss; it comes and goes with a regular dull rhythm. On this Spring Equinox, … Continue reading →
Posted in * Myeloma, Death & dying, Graft versus Host Disease
|
Tagged anniversary, burial, cat, Critical Care, death, diagnosis, dog, dying, If that's all there is, Intensive Care, Leiber & Stoller, living, Myeloma UK, Peggy Lee, sadness, skin, skin GvHD, stem cell transplant
|
21 Comments
jet black living... 