Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: Leukaemia
Drug dealing
Before I overwhelm you and me both with all that’s been happening medically in the last few weeks/months (if I ever get around to actually writing it up)… I’d like to share a bit of naughtiness I got up to … Continue reading
Posted in * Myeloma
Tagged allogeneic stem cell transplant, autistic, Cheers!, corset designer, drugs, graft, GvHD, Haematology, hospital corridors, Leukaemia, lymphoma, medication, naughty, needles, Nottingham City Hospital, pharmacy, sharps, STC, stem cell transplant, tablets, transplant clinic
9 Comments
The ‘C’ word
I’ve put off writing this post for a few weeks because I’ve been getting my own head around the ramifications, before sharing it with the world and having to deal with people’s reactions, as much as anything else. At my … Continue reading
Keeping my eye on the ball
One of the vulnerabilities for patients after a donor transplant is Pneumocystis pneumonia (PCP). According to Wiki: “Pneumocystis is commonly found in the lungs of healthy people, but, being a source of opportunistic infection, it can cause a lung infection in people with a weak … Continue reading
Posted in * Myeloma
Tagged allergic reaction, allogeneic stem cell transplant, anaphylaxis, antibiotic, co-trimoxazole, immune suppression, immune system, immunocompromised, Leukaemia, mini-allo, mortality, nebuliser, PCP, Pentamidine, pneumonia, prophylactic, Septrin, stem cell transplant, sulphonamides, suppressed immune system
14 Comments
Shabbat shalom
In Jewish tradition, Friday night is the beginning of Shabbat (the Sabbath), and cause for a weekly celebration which of course involves food… If you know anything about Judaism, you’ll know that everything involves food! I’m not at all religious … Continue reading
jet black living... 