Tag Archives: Dexamethasone

Ten things I learnt in Spain…

Posted on Sat, 14 Dec 2013 by

          For some light relief, let me share some of the challenges, joys and startling insights that I encountered while in Barcelona and Girona, in Spain for five days last week… 1. If I want to climb Girona‘s medieval … Continue reading →

Posted in * Myeloma, Fun, play & adventure, Graft versus Host Disease | Tagged , , , , , , , , , , , , , , , , , , | 12 Comments

Travellin’ shoes

Posted on Sat, 23 Feb 2013 by

Norway was amazing. My worries and anxieties came to nought in the end. I was never cold and only fell over once, in lovely soft snow. All the gear I bought did exactly what was required. Ice grippers are a … Continue reading →

Posted in * Myeloma | Tagged , , , , , , , , , , , , , | 13 Comments

Rituximab

Posted on Sat, 15 Dec 2012 by

No, this is not a high-scoring Scrabble word. If it were, it’d be worth 20 points… 40 on a Double Word. If I managed to get the X to land on a Triple Letter, it’d go up to 72, plus … Continue reading →

Posted in * Myeloma | Tagged , , , , , , , , , , , , , | 4 Comments

Blame it on the Dex… and other effects

Posted on Sun, 6 May 2012 by

The joys of Dex! I’m now off all medication – not even taking any vitamins or supplements – I just wanted a break before the next round of treatment and medication starts. I started writing this quite a few weeks ago … Continue reading →

Posted in * Myeloma | Tagged , , , , | 4 Comments

Pricks and possibilities…

Posted on Sat, 11 Feb 2012 by

I went to see the nurse at my GP surgery on Monday for the first of a round of new vaccinations I need now that it’s six months following the stem cell transplant, which would have wiped out all the … Continue reading →

Posted in * Myeloma | Tagged , , , , , | 8 Comments

Next line of treatment

Posted on Tue, 31 Jan 2012 by

After consulting Dr Cathy Williams last Monday, this is how they want to proceed with treatment: Velcade and Dexamethasone, plus Lansoprazole and Aciclovir. Velcade is administered intravenously, twice a week for two weeks, then one week off in a cycle of … Continue reading →

Posted in * Myeloma | Tagged , , , , , , , , | 17 Comments

Mixed feelings and good results!

Posted on Tue, 17 May 2011 by

From previous posts, you’ll know that my blood and urine results have all been very positive. They take about two weeks to be sent away for analysis. So the other day I called Sarah, one of the specialist nurses at the … Continue reading →

Posted in * Myeloma | Tagged , , , , | 2 Comments

Confidence and identity…

Posted on Thu, 28 Apr 2011 by

I’ve become aware that my sense of myself has noticeably changed in the past few months. Initially I was just ill, feeble and felt like I was close to death, so almost no sense of myself, except as an expiring worried … Continue reading →

Posted in Emotional health | Tagged , , , , , , , , | 2 Comments

No umbrella… no dancing shoes…

Posted on Fri, 15 Apr 2011 by

I recently added the tagline to my front page: “My life with Myeloma… And learning that life isn’t about waiting for the storm to pass, it’s about dancing in the rain.” Sounds great, doesn’t it? So spiritually aware and positive?! … Continue reading →

Posted in Emotional health | Tagged , , , , , | 2 Comments

Awake again…

Posted on Mon, 21 Feb 2011 by

Here I am, awake again at 06:16 on Monday morning… after a couple of hours of lying in bed awake, with my mind so very alive, even though my body could happily sleep. Yes, I’m on the Dexamethasone (steroids) – … Continue reading →

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