Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
Facebook groups
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Tag Archives: Dexamethasone
Travellin’ shoes
Norway was amazing. My worries and anxieties came to nought in the end. I was never cold and only fell over once, in lovely soft snow. All the gear I bought did exactly what was required. Ice grippers are a … Continue reading
Posted in * Myeloma
Tagged anxiety, confidence, Dexamethasone, fatigue, Graft versus Host Disease, GvHD, holiday, kidney impairment, pre-existing condition, remission, steroids, travel, travel insurance, vacation
13 Comments
Rituximab
No, this is not a high-scoring Scrabble word. If it were, it’d be worth 20 points… 40 on a Double Word. If I managed to get the X to land on a Triple Letter, it’d go up to 72, plus … Continue reading
Posted in * Myeloma
Tagged cannulation, Dexamethasone, Graft versus Host Disease, GvHD, insomnia, IV infusion, Paracetamol, Piriton, Prednisolone, Rituximab, Sleep, steroid, transplant, transplant rejection
4 Comments
Blame it on the Dex… and other effects
The joys of Dex! I’m now off all medication – not even taking any vitamins or supplements – I just wanted a break before the next round of treatment and medication starts. I started writing this quite a few weeks ago … Continue reading
Pricks and possibilities…
I went to see the nurse at my GP surgery on Monday for the first of a round of new vaccinations I need now that it’s six months following the stem cell transplant, which would have wiped out all the … Continue reading
Posted in * Myeloma
Tagged Dexamethasone, donor stem cell transpant, optician, relapse, remission, Velcade
8 Comments
Next line of treatment
After consulting Dr Cathy Williams last Monday, this is how they want to proceed with treatment: Velcade and Dexamethasone, plus Lansoprazole and Aciclovir. Velcade is administered intravenously, twice a week for two weeks, then one week off in a cycle of … Continue reading
Posted in * Myeloma
Tagged Aciclovir, anti-viral, Dexamethasone, Lansoprazole, peripheral neuropathy, proteasome inhibitor, shingles, T'ai Chi, Velcade
17 Comments
Mixed feelings and good results!
From previous posts, you’ll know that my blood and urine results have all been very positive. They take about two weeks to be sent away for analysis. So the other day I called Sarah, one of the specialist nurses at the … Continue reading
Posted in * Myeloma
Tagged cycling, Dexamethasone, Hickman line, stem cell transplant, steroids
2 Comments
