Tag Archives: side effects

Long time no write…

The days go by and turn into weeks and somehow I’ve not been motivated to write. It’s been hard to gather my thoughts and know what I want to say. Even harder to stay focused on one set of thoughts … Continue reading

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Thu SCT Day 0

Bear in mind that my days here in hospital begin around 2pm, when I came in, so writing this the morning after is still actually Day 0. Day 0 is the day they give back the stem cells which were … Continue reading

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A weekend of surprises…

Following the successful stem cell collection and a few days of much-needed quiet recovery, I had planned a weekend trip down to London for a family party and to Sissinghurst in Kent for pure pleasure. Although I normally moult quite … Continue reading

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Date changes & details

I’ve just had a call from Sarah at the hospital. The first date the Radiology department can fit my Hickman line is Wed 15 June. This means that the whole stem cell harvest process needs to be put back one … Continue reading

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Surrendering…

A couple of weeks ago I had a week living entirely on my own. Having time alone allows one to think… I thought and I felt a LOT! Here are some of my cogitations… One thing I’ve noticed in my … Continue reading

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Let’s talk about hair…

We all have some sort of emotional response about our hair. Women possibly more than men. We style it, cut it, shape it, straighten it, curl it, colour it, put it up in a pony tail or bunches, plait it, … Continue reading

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Confidence and identity…

I’ve become aware that my sense of myself has noticeably changed in the past few months. Initially I was just ill, feeble and felt like I was close to death, so almost no sense of myself, except as an expiring worried … Continue reading

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No umbrella… no dancing shoes…

I recently added the tagline to my front page: “My life with Myeloma… And learning that life isn’t about waiting for the storm to pass, it’s about dancing in the rain.” Sounds great, doesn’t it? So spiritually aware and positive?! … Continue reading

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Shock, collapse… to curious surrender

Of course, I couldn’t fully take it in. What????? MYELOMA?! What is that? What has it to do with me? Cancer? Death? Illness? Disability? Disease? Forever? Incurable? They had let me go home on Sunday night – a night off! … Continue reading

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Cocktail anyone…?

So… I was invited to take part in a clinical trial for the treatment of myeloma. The trial is a randomised comparison between the currently used combination of drugs and a newer, hopefully more effective set. The main benefit of … Continue reading

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