Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: myeloma
I’m a Survivor!
“The meaning of life is just to be alive. It is so plain and so obvious and so simple. And yet, everybody rushes around in a great panic as if it were necessary to achieve something beyond themselves.” – Alan … Continue reading
The last post…?
Last Saturday was a huge day in my life history calendar. Six years ago I was diagnosed with multiple Myeloma. Each year that passes makes that day, 4 Feb 2011, more and more significant and makes me more aware how lucky … Continue reading
Infection alert!
Friday morning, 4 April, saw me not-quite-leaping, more like cautiously rolling my stiff self, out of bed at an early hour to go off to volunteer at a Register & Be A Lifesaver [R&BE] stem cell register recruitment event at … Continue reading
Posted in * Myeloma, Graft versus Host Disease, Other health
Tagged Anthony Nolan, antibiotic, Certificate in Playback Theatre Practice, Chellaston Academy, Derby, endocarditis, Fletcher ward, Flucloxacillin, Haematology, Hickman line, hospital, infection, IV antibiotics, Jenny Parrish, myeloma, Nightstop, Nottingham City Hospital, osteomyelitis, Playback, Playback Theatre, pneumonia, R&BE, Register & Be a Lifesaver, School of Playback Theatre UK, Specialist Receiving Unit, SRU, staph. aureus, staphylococcus aureus, stem cell donor, stem cell register, temperature, Vancomycin, volunteer, volunteering
6 Comments
Injured in the line of duty…
You might think that no posts from this quarter means no interesting news. You’d be wrong… Mostly I’ve been so busy and so high and unable to concentrate due to the effects of steroids, that I’ve either not found/made the … Continue reading
Posted in Other health, Work & volunteering
Tagged A&E, Anthony Nolan, arm, Attenborough, Beeston Bakehouse, Bilborough College, blogging, bone marrow register, Bone Marrow Registry, British Bone Marrow Registry, buddy bandage, buddy taping, cake sale, Charlotte Connolly, concentration, cord blood, Delete Blood Cancer, dislocated, dog sledding, Dr Carolyn Lott, Dr Rashbal Ghattaora, driving, elevate, Emergency, Facebook, finger, Finland, First Aid, fracture, fundraising, hand, ice bag, Marrow, medical history, medication, MediLink, myeloma, NHS Blood Service, Nottingham, Nottingham Trent University, Paracetamol, proximal phalange, R&BE, recruitment, Register & Be a Lifesaver, Russell Pollard, stem cell register, steroids, student medical centre, students, Sunrise Medical Centre, swelling, swollen, variety, volunteering, x-ray
8 Comments
Myeloma UK Clinical Trials
From time to time, I receive email updates from Myeloma UK, covering a variety of topics. To be honest, usually I take a brief glance and delete them without further ado. I tend to leave the medical stuff to the … Continue reading
Posted in * Myeloma
Tagged clinical trial, Clinical Trial Network, myeloma, Myeloma UK, refractory, relpase, remission
12 Comments
jet black living... 