Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: Anthony Nolan
The last post…?
Last Saturday was a huge day in my life history calendar. Six years ago I was diagnosed with multiple Myeloma. Each year that passes makes that day, 4 Feb 2011, more and more significant and makes me more aware how lucky … Continue reading
Destination: Cure – “it can only grow from here”
In July I attended a Reception for the All Party Parliamentary Group on stem cell transplantation at the Houses of Parliament. This is a group of MPs who support, campaign around and are interested in stem cell transplants, at a … Continue reading
Posted in * Myeloma
Tagged A Road Map for Recovery, All Party Parliamentary Group on stem cell transplantation, allogeneic stem cell transplant, Anna Soubry MP, Anthony Nolan, APPG, blood donating, Bone Marrow Registry, David Burrowes MP, Delete Blood Cancer, Destination Cure, Graft versus Host Disease, GvHD, Houses of Parliament, stem cell register
1 Comment
Recording my anniversary
I’ve not written a blog post for ages. Lots of stuff, both medical and fun, has happened and is happening. Nothing serious or life-threatening on the medical side, although the visit from the Critical Care Unit nurse while I was … Continue reading
Posted in * Myeloma, Fun, play & adventure
Tagged afternoon tea, allo, allogeneic, anniversary, Anthony Nolan, blog, blogging, campaign, Chatsworth, Haematology, late effects, London, mini-allo, NHS England, Paris, respiratory, RIC allo, SCT, stem cell transplant, Video, World Service Nottingham
8 Comments
Infection alert!
Friday morning, 4 April, saw me not-quite-leaping, more like cautiously rolling my stiff self, out of bed at an early hour to go off to volunteer at a Register & Be A Lifesaver [R&BE] stem cell register recruitment event at … Continue reading
Posted in * Myeloma, Graft versus Host Disease, Other health
Tagged Anthony Nolan, antibiotic, Certificate in Playback Theatre Practice, Chellaston Academy, Derby, endocarditis, Fletcher ward, Flucloxacillin, Haematology, Hickman line, hospital, infection, IV antibiotics, Jenny Parrish, myeloma, Nightstop, Nottingham City Hospital, osteomyelitis, Playback, Playback Theatre, pneumonia, R&BE, Register & Be a Lifesaver, School of Playback Theatre UK, Specialist Receiving Unit, SRU, staph. aureus, staphylococcus aureus, stem cell donor, stem cell register, temperature, Vancomycin, volunteer, volunteering
6 Comments
Injured in the line of duty…
You might think that no posts from this quarter means no interesting news. You’d be wrong… Mostly I’ve been so busy and so high and unable to concentrate due to the effects of steroids, that I’ve either not found/made the … Continue reading
Posted in Other health, Work & volunteering
Tagged A&E, Anthony Nolan, arm, Attenborough, Beeston Bakehouse, Bilborough College, blogging, bone marrow register, Bone Marrow Registry, British Bone Marrow Registry, buddy bandage, buddy taping, cake sale, Charlotte Connolly, concentration, cord blood, Delete Blood Cancer, dislocated, dog sledding, Dr Carolyn Lott, Dr Rashbal Ghattaora, driving, elevate, Emergency, Facebook, finger, Finland, First Aid, fracture, fundraising, hand, ice bag, Marrow, medical history, medication, MediLink, myeloma, NHS Blood Service, Nottingham, Nottingham Trent University, Paracetamol, proximal phalange, R&BE, recruitment, Register & Be a Lifesaver, Russell Pollard, stem cell register, steroids, student medical centre, students, Sunrise Medical Centre, swelling, swollen, variety, volunteering, x-ray
8 Comments
Sea-salted star-stuff… gifts and miracles
“The cosmos is within us. We are made of star-stuff. We are a way for the universe to know itself.” ― Carl Sagan I’d like to share something written by my friend Rebecca (with an acknowledged nod to Carl Sagan), who is still in … Continue reading
Posted in Miscellaneous
Tagged allogeneic stem cell transplant, Anthony Nolan, Australian Bone Marrow Donor Registry, Be the Match, Bone Marrow Registry, Carl Sagan, Delete Blood Cancer, ethnic background, Ezer Mizion Bone Marrow Donor Registry, fear, Héma-Québec, Jewish, living, lympoma, miracle, MUD stem cell transplant, One Match, Sephardi, stem cell donation, stem cell donor, stem cell transplant, stem cells
3 Comments
31 Fresh Marrows!
Tuesday 11 December sees me up with the lark, around 7:30. A rare occurrence these days. I’m on my way to the Medical School at Nottingham University, linked to the Queens Medical Centre, just three miles down the road, to … Continue reading
Posted in * Myeloma
Tagged Anthony Nolan, Jewish, Marrow, stem cell donor, stem cell transplant
1 Comment
Shabbat shalom
In Jewish tradition, Friday night is the beginning of Shabbat (the Sabbath), and cause for a weekly celebration which of course involves food… If you know anything about Judaism, you’ll know that everything involves food! I’m not at all religious … Continue reading
jet black living... 