Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: stem cell transplant
I’m a Survivor!
“The meaning of life is just to be alive. It is so plain and so obvious and so simple. And yet, everybody rushes around in a great panic as if it were necessary to achieve something beyond themselves.” – Alan … Continue reading
Happy Birthday
Today I am officially three years old. Three years ago today I had a stem cell transplant which is the main reason I’m still here. Celebrations today were extremely low key, unlike two years ago or even last year. Three good friends … Continue reading
Recording my anniversary
I’ve not written a blog post for ages. Lots of stuff, both medical and fun, has happened and is happening. Nothing serious or life-threatening on the medical side, although the visit from the Critical Care Unit nurse while I was … Continue reading
Posted in * Myeloma, Fun, play & adventure
Tagged afternoon tea, allo, allogeneic, anniversary, Anthony Nolan, blog, blogging, campaign, Chatsworth, Haematology, late effects, London, mini-allo, NHS England, Paris, respiratory, RIC allo, SCT, stem cell transplant, Video, World Service Nottingham
8 Comments
Drug dealing
Before I overwhelm you and me both with all that’s been happening medically in the last few weeks/months (if I ever get around to actually writing it up)… I’d like to share a bit of naughtiness I got up to … Continue reading
Posted in * Myeloma
Tagged allogeneic stem cell transplant, autistic, Cheers!, corset designer, drugs, graft, GvHD, Haematology, hospital corridors, Leukaemia, lymphoma, medication, naughty, needles, Nottingham City Hospital, pharmacy, sharps, STC, stem cell transplant, tablets, transplant clinic
9 Comments
Legs eleven…
No, I haven’t started playing Bingo! But I do have a new problem to report… it’s my legs… well, it’s my arms and legs… Since around April this year, all my limb muscles have become very tight and stiff. You … Continue reading
Posted in * Myeloma, Graft versus Host Disease
Tagged allogeneic stem cell transplant, Bingo, chronic GvHD, Ciclosporin, CK, CPK, Creatine kinase, Creatine Phosphokinase, Elizabeth Romhild, Graft versus Host Disease, GvHD, joints, Min Jeong Seo, mini-allo, muscle flexibility, muscle tightness, muscle weakness, muscles, myopathy, myositis, skin, statins, stem cell transplant, steroids, T'ai Chi, tendons, tight muscles
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A comic moment in clinic
Having written a fair bit about dying recently, and with another post to come on the subject, not to mention some more medical posts, I’d first like to share an amusing anecdote from life at Transplant clinic… When attending Transplant … Continue reading
Posted in * Myeloma
Tagged allogeneic, Dr Chris Fox, Dr Jenny Byrne, Haematology, mini-allo, Nottingham, Prof Russell, stem cell transplant, transplant clinic
3 Comments
Dastardly diarrhoea
Yup, that’s today’s jolly little subject. Sorry folks! But at least you know what’s coming in advance. I’m not going to spring something on you that you weren’t expecting. This blog post will do exactly what it says on the … Continue reading
Posted in * Myeloma, Other health
Tagged allogeneic, Budesonide, diarrhoea, Dioralyte, Entocort, Graft versus Host Disease, gut GvHD, GvHD, Imodium, incontinence, stem cell transplant
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A pity party? No, a damn good myeloma party!
A pity party is one “in which you spend your time feeling sorry for yourself and whining endlessly about how crappy your life is.” (as defined by Urban Dictionary). It would be very easy and understandable for any of us … Continue reading
Posted in * Myeloma, Emotional health, Fun, play & adventure
Tagged anger, autologous stem cell transplant, birthday, blog, blogging, Bortezomib, CC Smugglers, celebration, clinical trial, devastation, Disco 2000, fear, fundraising, hospice, Jarvis Cocker, myeloma forum, Myeloma UK, pain, peripheral neuropathy, picnic, pity party, positive attitude, remission, smouldering myeloma, stem cell, stem cell harvest, stem cell transplant, stem cells, support, transplant, treatment, Velcade
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jet black living... 