Tag Archives: stem cell transplant

Happy Birthday

Today I am officially three years old. Three years ago today I had a stem cell transplant which is the main reason I’m still here. Celebrations today were extremely low key, unlike two years ago or even last year. Three good friends … Continue reading

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Recording my anniversary

I’ve not written a blog post for ages. Lots of stuff, both medical and fun, has happened and is happening. Nothing serious or life-threatening on the medical side, although the visit from the Critical Care Unit nurse while I was … Continue reading

Posted in * Myeloma, Fun, play & adventure | Tagged , , , , , , , , , , , , , , , , , , , , | 8 Comments

The sadness of so many losses

I began writing this a couple of months ago but didn’t finish the draft I’d started. Today though I’ve been reminded again of the sadness of loss; it comes and goes with a regular dull rhythm. On this Spring Equinox, … Continue reading

Posted in * Myeloma, Death & dying, Graft versus Host Disease | Tagged , , , , , , , , , , , , , , , , , | 21 Comments

Drug dealing

Before I overwhelm you and me both with all that’s been happening medically in the last few weeks/months (if I ever get around to actually writing it up)… I’d like to share a bit of naughtiness I got up to … Continue reading

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Legs eleven…

No, I haven’t started playing Bingo! But I do have a new problem to report… it’s my legs… well, it’s my arms and legs… Since around April this year, all my limb muscles have become very tight and stiff. You … Continue reading

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A comic moment in clinic

Having written a fair bit about dying recently, and with another post to come on the subject, not to mention some more medical posts, I’d first like to share an amusing anecdote from life at Transplant clinic… When attending Transplant … Continue reading

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Dastardly diarrhoea

Yup, that’s today’s jolly little subject. Sorry folks! But at least you know what’s coming in advance. I’m not going to spring something on you that you weren’t expecting. This blog post will do exactly what it says on the … Continue reading

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18 month post-transplant review

Today is 18 months to the day after my allogeneic transplant. It’s my 18-month-iversary! I’m alive, pretty well for the most part, looking and feeling good. So today is worthy of a celebration, although it is more of a quiet … Continue reading

Posted in * Myeloma, Emotional health, Fun, play & adventure, Other health, Sleep apnoea, Work & volunteering, Writing | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 10 Comments

A pity party? No, a damn good myeloma party!

A pity party is one “in which you spend your time feeling sorry for yourself and whining endlessly about how crappy your life is.” (as defined by Urban Dictionary). It would be very easy and understandable for any of us … Continue reading

Posted in * Myeloma, Emotional health, Fun, play & adventure | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 8 Comments

Sea-salted star-stuff… gifts and miracles

“The cosmos is within us. We are made of star-stuff. We are a way for the universe to know itself.” ― Carl Sagan I’d like to share something written by my friend Rebecca (with an acknowledged nod to Carl Sagan), who is still in … Continue reading

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