Tag Archives: remission

Myeloma UK Clinical Trials

From time to time, I receive email updates from Myeloma UK, covering a variety of topics. To be honest, usually I take a brief glance and delete them without further ado. I tend to leave the medical stuff to the … Continue reading

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18 month post-transplant review

Today is 18 months to the day after my allogeneic transplant. It’s my 18-month-iversary! I’m alive, pretty well for the most part, looking and feeling good. So today is worthy of a celebration, although it is more of a quiet … Continue reading

Posted in * Myeloma, Emotional health, Fun, play & adventure, Other health, Sleep apnoea, Work & volunteering, Writing | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 10 Comments

A pity party? No, a damn good myeloma party!

A pity party is one “in which you spend your time feeling sorry for yourself and whining endlessly about how crappy your life is.” (as defined by Urban Dictionary). It would be very easy and understandable for any of us … Continue reading

Posted in * Myeloma, Emotional health, Fun, play & adventure | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 8 Comments

Rusty…

My writing skills… my mental clarity… my English vocabulary… my concentration… my memory… all rather rusty, I’m afraid, after my vacation. Is it the sea water and sunshine perhaps, like an old Fiat car…? Maybe holiday inertia or just being … Continue reading

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Identity shift

On 16 April, I was eleven months post-transplant. That’s almost a year! And what a celebration I’m going to have for my one-year anniversary, on 16 May! But for now, I’m quite content with quietly appreciating how well things are … Continue reading

Posted in * Myeloma, Emotional health | Tagged , , , , , , , , , , , , , , , , , , | 13 Comments

Minor scare

For the past couple of weeks, I have been feeling unbelievably tired, constantly, from when I wake up, throughout the day, until I go to bed at night. Additionally, my myeloma middle-back pain seemed to be making its presence known … Continue reading

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Travellin’ shoes

Norway was amazing. My worries and anxieties came to nought in the end. I was never cold and only fell over once, in lovely soft snow. All the gear I bought did exactly what was required. Ice grippers are a … Continue reading

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The ‘C’ word

I’ve put off writing this post for a few weeks because I’ve been getting my own head around the ramifications, before sharing it with the world and having to deal with people’s reactions, as much as anything else. At my … Continue reading

Posted in * Myeloma | Tagged , , , , , , , , , , , , , | 24 Comments

It’s working!

This is just a quick post lest I forget to mention it… I kinda took it on the chin, but perhaps we should be shouting about it… I’ve been having blood tests since I first heard about the relapse, with … Continue reading

Posted in * Myeloma | Tagged , , | 14 Comments

What happens next?

Although I’ve hinted, I’ve not yet written about what happens after this round of treatment on Velcade. Those of you with Myeloma or other blood cancers will know or guess what’s on the cards, but for the rest of you, … Continue reading

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