Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: temperature
Infection alert!
Friday morning, 4 April, saw me not-quite-leaping, more like cautiously rolling my stiff self, out of bed at an early hour to go off to volunteer at a Register & Be A Lifesaver [R&BE] stem cell register recruitment event at … Continue reading
Posted in * Myeloma, Graft versus Host Disease, Other health
Tagged Anthony Nolan, antibiotic, Certificate in Playback Theatre Practice, Chellaston Academy, Derby, endocarditis, Fletcher ward, Flucloxacillin, Haematology, Hickman line, hospital, infection, IV antibiotics, Jenny Parrish, myeloma, Nightstop, Nottingham City Hospital, osteomyelitis, Playback, Playback Theatre, pneumonia, R&BE, Register & Be a Lifesaver, School of Playback Theatre UK, Specialist Receiving Unit, SRU, staph. aureus, staphylococcus aureus, stem cell donor, stem cell register, temperature, Vancomycin, volunteer, volunteering
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Vlog #2: Admitted to hospital
I’ve just spent eight days in hospital due to a serious infection via my Hickman line. I’m in the midst of writing about it, but having difficulty concentrating, so it may take some time. In the meantime, here’s a little … Continue reading
Discharged
After two nights in the Specialist Receiving Unit, and not being transferred to any other ward, neither oncology nor haematology, I was discharged. My whole stay in hospital was happily short-lived and uneventful. When I arrived on Sunday, I expected … Continue reading
Just when you think it’s safe…
It’s over 7 months since the transplant and I’ve been very lucky… 100% chimerism, undetectable myeloma, very mild GvHD and no serious infections. Until now… For the past three days I’ve had an increasingly painful sore throat, with a phlegmy … Continue reading
jet black living... 