Tag Archives: stem cell transplant

Sea-salted star-stuff… gifts and miracles

“The cosmos is within us. We are made of star-stuff. We are a way for the universe to know itself.” ― Carl Sagan I’d like to share something written by my friend Rebecca (with an acknowledged nod to Carl Sagan), who is still in … Continue reading

Posted in Miscellaneous | Tagged , , , , , , , , , , , , , , , , , , , , , | 3 Comments

Rusty…

My writing skills… my mental clarity… my English vocabulary… my concentration… my memory… all rather rusty, I’m afraid, after my vacation. Is it the sea water and sunshine perhaps, like an old Fiat car…? Maybe holiday inertia or just being … Continue reading

Posted in Miscellaneous | Tagged , , , , , , , , , | 6 Comments

Joyeux anniversaire à moi!

I’ve done it! I’ve survived the first year post-allogeneic (unrelated donor) stem cell transplant. That’s really quite something to celebrate, especially as I’ve not just survived, but I’m doing pretty well… you might even say thriving! Thursday 16 May was … Continue reading

Posted in * Myeloma, Fun, play & adventure | Tagged , , , , , , | 32 Comments

Identity shift

On 16 April, I was eleven months post-transplant. That’s almost a year! And what a celebration I’m going to have for my one-year anniversary, on 16 May! But for now, I’m quite content with quietly appreciating how well things are … Continue reading

Posted in * Myeloma, Emotional health | Tagged , , , , , , , , , , , , , , , , , , | 13 Comments

Out of adversity…

“Out of adversity comes opportunity.” – Benjamin Franklin Tuesdays come around each week, regular as clockwork. These days Tuesdays see me going to Derby. Well, it makes a change from weekly visits to clinic… but that was on Thursdays. Anyway, … Continue reading

Posted in * Myeloma | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 13 Comments

The ‘C’ word

I’ve put off writing this post for a few weeks because I’ve been getting my own head around the ramifications, before sharing it with the world and having to deal with people’s reactions, as much as anything else. At my … Continue reading

Posted in * Myeloma | Tagged , , , , , , , , , , , , , | 24 Comments

Resting

I’ve been busy. I’ve been very busy. Although it may not seem like it, even to me, I’m doing a lot for someone at this point in recovery. And that’s the crucial point! It’s easy to think, over eight months … Continue reading

Posted in * Myeloma | Tagged , , , , , , , | 23 Comments

January 2013

January 2013 marks eight months post-transplant, so time for an update… I’m well and truly over the virus I had over New Year… and the accompanying anxiety. My blood counts remain good. I don’t even look at the results now. The … Continue reading

Posted in * Myeloma | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 18 Comments

Keeping my eye on the ball

One of the vulnerabilities for patients after a donor transplant is Pneumocystis pneumonia (PCP). According to Wiki: “Pneumocystis is commonly found in the lungs of healthy people, but, being a source of opportunistic infection, it can cause a lung infection in people with a weak … Continue reading

Posted in * Myeloma | Tagged , , , , , , , , , , , , , , , , , , , | 14 Comments

Just when you think it’s safe…

It’s over 7 months since the transplant and I’ve been very lucky… 100% chimerism, undetectable myeloma, very mild GvHD and no serious infections. Until now… For the past three days I’ve had an increasingly painful sore throat, with a phlegmy … Continue reading

Posted in * Myeloma | Tagged , , , , , , , , , , , , , , , , , , , , | 10 Comments