Dancing in the rain
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: stem cell donor
Infection alert!
Friday morning, 4 April, saw me not-quite-leaping, more like cautiously rolling my stiff self, out of bed at an early hour to go off to volunteer at a Register & Be A Lifesaver [R&BE] stem cell register recruitment event at … Continue reading
Posted in * Myeloma, Graft versus Host Disease, Other health
Tagged Anthony Nolan, antibiotic, Certificate in Playback Theatre Practice, Chellaston Academy, Derby, endocarditis, Fletcher ward, Flucloxacillin, Haematology, Hickman line, hospital, infection, IV antibiotics, Jenny Parrish, myeloma, Nightstop, Nottingham City Hospital, osteomyelitis, Playback, Playback Theatre, pneumonia, R&BE, Register & Be a Lifesaver, School of Playback Theatre UK, Specialist Receiving Unit, SRU, staph. aureus, staphylococcus aureus, stem cell donor, stem cell register, temperature, Vancomycin, volunteer, volunteering
6 Comments
Sea-salted star-stuff… gifts and miracles
“The cosmos is within us. We are made of star-stuff. We are a way for the universe to know itself.” ― Carl Sagan I’d like to share something written by my friend Rebecca (with an acknowledged nod to Carl Sagan), who is still in … Continue reading
Posted in Miscellaneous
Tagged allogeneic stem cell transplant, Anthony Nolan, Australian Bone Marrow Donor Registry, Be the Match, Bone Marrow Registry, Carl Sagan, Delete Blood Cancer, ethnic background, Ezer Mizion Bone Marrow Donor Registry, fear, Héma-Québec, Jewish, living, lympoma, miracle, MUD stem cell transplant, One Match, Sephardi, stem cell donation, stem cell donor, stem cell transplant, stem cells
3 Comments
31 Fresh Marrows!
Tuesday 11 December sees me up with the lark, around 7:30. A rare occurrence these days. I’m on my way to the Medical School at Nottingham University, linked to the Queens Medical Centre, just three miles down the road, to … Continue reading
Posted in * Myeloma
Tagged Anthony Nolan, Jewish, Marrow, stem cell donor, stem cell transplant
1 Comment