Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: Ciclosporin
Legs eleven…
No, I haven’t started playing Bingo! But I do have a new problem to report… it’s my legs… well, it’s my arms and legs… Since around April this year, all my limb muscles have become very tight and stiff. You … Continue reading
Posted in * Myeloma, Graft versus Host Disease
Tagged allogeneic stem cell transplant, Bingo, chronic GvHD, Ciclosporin, CK, CPK, Creatine kinase, Creatine Phosphokinase, Elizabeth Romhild, Graft versus Host Disease, GvHD, joints, Min Jeong Seo, mini-allo, muscle flexibility, muscle tightness, muscle weakness, muscles, myopathy, myositis, skin, statins, stem cell transplant, steroids, T'ai Chi, tendons, tight muscles
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Six months on
16 November marked six months post-transplant, so time for a quick update. And it’s mostly good news… The frequency of my clinic appointments is going down, as is the number of drugs I’m now taking. When I first came out … Continue reading
Posted in * Myeloma
Tagged Aciclovir, allogeneic stem cell transplant, blood test, Budesonide, Ciclosporin, CMV, Difflam, Elugel, FBC, Fluoxetine, genital warts, GvHD, kidneys, Nystatin, oral thrush, Penicillin, Pentamidine, Prednisolone, Prozac, serum-free light chain, sore mouth, Tacrolimus, transplant, U&E
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Striving for Balance
Endeavouring to find balance seems to be my current new way of life… and doing a lot of wobbling in the process. On a medical level, the doctors have been striving for balance of the Ciclosporin (immune-suppressant) dosage. They needed to … Continue reading
