Dancing in the rain
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Tag Archives: appetite
Identity shift
On 16 April, I was eleven months post-transplant. That’s almost a year! And what a celebration I’m going to have for my one-year anniversary, on 16 May! But for now, I’m quite content with quietly appreciating how well things are … Continue reading
Posted in * Myeloma, Emotional health
Tagged allogeneic stem cell transplant, anxiety, appetite, back pain, disabled, energy, fatigue, identity, mini-allo, remission, responsibility, stamina, stem cell transplant, stronger, surrender, transplant, trust, Wales, work
13 Comments
Striving for Balance
Endeavouring to find balance seems to be my current new way of life… and doing a lot of wobbling in the process. On a medical level, the doctors have been striving for balance of the Ciclosporin (immune-suppressant) dosage. They needed to … Continue reading
Sat-Mon SCT Days 16-18
So, here’s a list of my current symptoms: Diarrhoeia – less frequent and more in control. No more accidents. Yay! But still liquid. I take Loperamide after every toilet visit. Sickness – only twice. Once following a very strong-tasting soup, once … Continue reading
Posted in * Myeloma
Tagged appetite, depression, diarrhoeia, dryness, energy, positive attitude, remission, sickness, stem cell transplant
7 Comments