Category Archives: Miscellaneous

A Letter to my MP

I have a problem… not medical this time, but financial… I began receiving Disability Living Allowance [DLA] when I was first diagnosed three years ago. The initial period for the welfare benefit was for three years, after which time I could … Continue reading

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The grand finale – Part I

If you thought this post is about my own finale, you’d be right. Those of you who hoped it was a teasing headline about something else may be disappointed, but hopefully not saddened. It’s not a gloomy post, I promise, but … Continue reading

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Sea-salted star-stuff… gifts and miracles

“The cosmos is within us. We are made of star-stuff. We are a way for the universe to know itself.” ― Carl Sagan I’d like to share something written by my friend Rebecca (with an acknowledged nod to Carl Sagan), who is still in … Continue reading

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Rusty…

My writing skills… my mental clarity… my English vocabulary… my concentration… my memory… all rather rusty, I’m afraid, after my vacation. Is it the sea water and sunshine perhaps, like an old Fiat car…? Maybe holiday inertia or just being … Continue reading

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Apologies

Two weeks ago, I invited readers to ask me questions or to ask me to write about something in particular. I’ve had a few responses, for which I’m very grateful. Thank you to those who responded for your contributions. This … Continue reading

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Living with questions

Living with myeloma by its very nature is about living with uncertainty. And living with uncertainty means living with questions. Actually, uncertainty is something we all live with, whether we are aware of it or not. But people with myeloma … Continue reading

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“Crazy Sexy Cancer” review

My brother generously sent me a book called “Crazy Sexy Cancer Tips”, by Kris Carr. She’s a 31 year old American woman who has a rare cancer (epithelioid hemangioendothelioma). I think it’s rarer than mine – certainly harder to pronounce! … Continue reading

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