Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
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Category Archives: Miscellaneous
A Letter to my MP
I have a problem… not medical this time, but financial… I began receiving Disability Living Allowance [DLA] when I was first diagnosed three years ago. The initial period for the welfare benefit was for three years, after which time I could … Continue reading
Posted in * Myeloma, Graft versus Host Disease, Miscellaneous
Tagged Anna Soubry, Benefits Advisor, Broxtowe, Department for Work and Pensions, Disability Living Allowance, Disabled Blue Badge, DLA, DWP, Employment Support Allowance, ESA, finance, Maggies Centre, Motability, MP, Personal Independence Payment, PIP, Welfare Rights
18 Comments
Sea-salted star-stuff… gifts and miracles
“The cosmos is within us. We are made of star-stuff. We are a way for the universe to know itself.” ― Carl Sagan I’d like to share something written by my friend Rebecca (with an acknowledged nod to Carl Sagan), who is still in … Continue reading
Posted in Miscellaneous
Tagged allogeneic stem cell transplant, Anthony Nolan, Australian Bone Marrow Donor Registry, Be the Match, Bone Marrow Registry, Carl Sagan, Delete Blood Cancer, ethnic background, Ezer Mizion Bone Marrow Donor Registry, fear, Héma-Québec, Jewish, living, lympoma, miracle, MUD stem cell transplant, One Match, Sephardi, stem cell donation, stem cell donor, stem cell transplant, stem cells
3 Comments
Apologies
Two weeks ago, I invited readers to ask me questions or to ask me to write about something in particular. I’ve had a few responses, for which I’m very grateful. Thank you to those who responded for your contributions. This … Continue reading
Posted in Miscellaneous
Tagged blogging, Cancer, Liebster Award, living, living with questions, relief, surrender, treatment, uncertainty
4 Comments
Living with questions
Living with myeloma by its very nature is about living with uncertainty. And living with uncertainty means living with questions. Actually, uncertainty is something we all live with, whether we are aware of it or not. But people with myeloma … Continue reading
Posted in * Myeloma, Miscellaneous
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“Crazy Sexy Cancer” review
My brother generously sent me a book called “Crazy Sexy Cancer Tips”, by Kris Carr. She’s a 31 year old American woman who has a rare cancer (epithelioid hemangioendothelioma). I think it’s rarer than mine – certainly harder to pronounce! … Continue reading
Synchronicity…
I wonder what it is with me and the first of February? In 1982, I moved to London on 1 Feb for what was to be a major change in my life, from small town Liverpool to the big exciting … Continue reading
Posted in Miscellaneous
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Awake again…
Here I am, awake again at 06:16 on Monday morning… after a couple of hours of lying in bed awake, with my mind so very alive, even though my body could happily sleep. Yes, I’m on the Dexamethasone (steroids) – … Continue reading
Hello world!
Welcome to my new blog… I want to use this blog to share my experiences of living with myeloma, dealing with the symptoms, treatments and emotions and making the most of life. I’m not even sure I’m a decent writer, … Continue reading
Posted in Miscellaneous
2 Comments
jet black living... 