Category Archives: Graft versus Host Disease

Blurred lines…?

So, with my new resolve to write shorter, more frequent posts, here’s the next one… My Hickman line half fell out on Friday 13 June. I don’t believe the date was to blame. I do wonder though, if perhaps nurse … Continue reading

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Infection alert!

Friday morning, 4 April, saw me not-quite-leaping, more like cautiously rolling my stiff self, out of bed at an early hour to go off to volunteer at a Register & Be A Lifesaver [R&BE] stem cell register recruitment event at … Continue reading

Posted in * Myeloma, Graft versus Host Disease, Other health | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 6 Comments

The sadness of so many losses

I began writing this a couple of months ago but didn’t finish the draft I’d started. Today though I’ve been reminded again of the sadness of loss; it comes and goes with a regular dull rhythm. On this Spring Equinox, … Continue reading

Posted in * Myeloma, Death & dying, Graft versus Host Disease | Tagged , , , , , , , , , , , , , , , , , | 21 Comments

A Letter to my MP

I have a problem… not medical this time, but financial… I began receiving Disability Living Allowance [DLA] when I was first diagnosed three years ago. The initial period for the welfare benefit was for three years, after which time I could … Continue reading

Posted in * Myeloma, Graft versus Host Disease, Miscellaneous | Tagged , , , , , , , , , , , , , , , , | 18 Comments

Bronchoscopy for lung GVHD

Rather than trying to find the time to catch up and do things in the correct chronological order, I’m just going to post this now. A lot of health issues have gradually come to the surface over the past few … Continue reading

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Ten things I learnt in Spain…

          For some light relief, let me share some of the challenges, joys and startling insights that I encountered while in Barcelona and Girona, in Spain for five days last week… 1. If I want to climb Girona‘s medieval … Continue reading

Posted in * Myeloma, Fun, play & adventure, Graft versus Host Disease | Tagged , , , , , , , , , , , , , , , , , , | 12 Comments

Legs eleven…

No, I haven’t started playing Bingo! But I do have a new problem to report… it’s my legs… well, it’s my arms and legs… Since around April this year, all my limb muscles have become very tight and stiff. You … Continue reading

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