Dancing in the rain
Anyone who thinks that only sunshine brings happiness has never danced in the rain...
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Recent Posts
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* Myeloma
- Myeloma Beacon : Independent, up-to-date news and information about myeloma, from the USA
- Myeloma blogs : A place to find other myeloma blogs, or even add your own
- Myeloma UK : Supporting people with myeloma and related disorders
- Myeloma XI trial : Information about the clinical trial I was on at the beginning of treatment
- Wendy : Living with Myeloma in remission, in Manchester, UK
Cancer
- Macmillan Cancer Support : Providing practical, medical and financial support and push for better cancer care
Donating
- Anthony Nolan : A UK charity that registers and matches potential stem cell donors for people with a blood cancer
- Be the Match : National Marrow Donor Programme, in the USA
- Give Blood : If you’re generally healthy and aged 17 or over, do something amazing!
- Nottingham Marrow : A student group recruiting people to the Anthony Nolan stem cell register
- Organ donation : A place to register as a donor – even as a living donor
- Register & Be a Lifesaver : A UK educational programme to raise awareness of blood, stem cell and organ donation
Facebook groups
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Aciclovir allogeneic stem cell transplant anniversary Anthony Nolan antibiotic anxiety autologous stem cell transplant blog blogging blood count blood test bone disease bone marrow biopsy Cancer cannula cannulation chemotherapy chimerism clinical trial confidence CPAP cycling death depression Dexamethasone donor stem cell transpant drugs dying fatigue fear Fluoxetine Graft versus Host Disease GvHD Haematology Hickman line immune suppression immune system immunocompromised infection insomnia Jewish kidneys Leukaemia light chains list for living living Maggies Centre Melphalan mindfulness mini-allo myeloma Myeloma UK Penicillin positive attitude Prednisolone relapse remission Revlimid SCT shock side effects Sleep Snoring stem cell transplant steroids suppressed immune system T'ai Chi total body irradiation transplant Velcade Video volunteering writing x-ray Zometa
Category Archives: Fun, play & adventure
Recording my anniversary
I’ve not written a blog post for ages. Lots of stuff, both medical and fun, has happened and is happening. Nothing serious or life-threatening on the medical side, although the visit from the Critical Care Unit nurse while I was … Continue reading
Posted in * Myeloma, Fun, play & adventure
Tagged afternoon tea, allo, allogeneic, anniversary, Anthony Nolan, blog, blogging, campaign, Chatsworth, Haematology, late effects, London, mini-allo, NHS England, Paris, respiratory, RIC allo, SCT, stem cell transplant, Video, World Service Nottingham
8 Comments
One hundred Likes!
I’ve just received notification from WordPress that I’ve had a total of 100 Likes on my blog posts. Number one hundred came in the form of my good friend, Wendy who also blogs and for your prize… you get to … Continue reading
A pity party? No, a damn good myeloma party!
A pity party is one “in which you spend your time feeling sorry for yourself and whining endlessly about how crappy your life is.” (as defined by Urban Dictionary). It would be very easy and understandable for any of us … Continue reading
Posted in * Myeloma, Emotional health, Fun, play & adventure
Tagged anger, autologous stem cell transplant, birthday, blog, blogging, Bortezomib, CC Smugglers, celebration, clinical trial, devastation, Disco 2000, fear, fundraising, hospice, Jarvis Cocker, myeloma forum, Myeloma UK, pain, peripheral neuropathy, picnic, pity party, positive attitude, remission, smouldering myeloma, stem cell, stem cell harvest, stem cell transplant, stem cells, support, transplant, treatment, Velcade
8 Comments
